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Subject: Re: Cystic Hygorma Author: Michelle [ Next Thread | Previous Thread | Next Message | Previous Message ] Date Posted: 12:28:13 03/22/03 Sat In reply to: Lisa 's message, "Cystic Hygorma" on 07:58:21 03/19/03 Wed Lisa, I read your post and it brings back the memory of a year ago when I received a suspicious report after my 12 week u/s. The nuchal translucency measurement was elevated and they were worried about Downs or Trisomy 18. I was very scared because we had also been trying to conceive for several years. We have a 9 year old daughter also. I had to have another u/s at 15 weeks and things looked better so we were more relieved. Then I had a 22 week u/s and the nightmares started. The baby had a heart problem and some other problems that showed up. They convinced us to have an amnio to see what was wrong. WE did and it was Trisomy 18 which is one of the worse chromosome problems for a baby. They told me she probably would not live to be born and to abort. After a lot of prayer and discussion we chose to keep our baby and let God decide when it was her time to be born and we prayed for her to be healed. It was a very hard pregnancy knowing that the odds were against her but I felt good about my decision to keep her. I hope I am not making you feel worse about everything but I did want you to know that I do know how you feel and would be happy to talk to you at any time. It helps so much to talk to someone that has experienced something similar. Our daughter was born March 5, 2002 and she looked so perfect just really small. A little over 4 pounds. Everything on the inside of her was too small and had not developed properly. She had a hard time breathing and did not cry very much. WE go to spend 3 precious hours with her and we were so proud of that time. My daughter was right there with us and held her and bathed her and we all did this together as a family and it really helped. I won't tell you that it was not the hardest thing I have ever dealt with but our faith grew so much during that time and we did have peace even though we had lost our daughter. We still miss her so much and will always think of her. We are thankful that we now a year later had a beautiful healthy baby boy born one day after she was born, March 6. I was scared at first but things went so well with this pregnancy. We would have never known the wonderful blessing of our son if we had not experienced the loss a year ago. WE don't understand why God took her but he did bless us again and we are so thankful for our son. He is so perfect and precious. I will enjoy every minute with him. I pray for you and your family that you will get a good diagnosis and that maybe it will not be anything real bad. Sometimes u/s do show up things that are nothing to worry about. Leave your little baby in God's hands and he will take care of you and your family. Please let me know how things are going and know I will be thinking of you. Love, Michelle [ Next Thread | Previous Thread | Next Message | Previous Message ]

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[> Subject: Re: Cystic Hygorma Author: Ashley [ Edit | View ] Date Posted: 21:00:34 03/22/03 Sat Hello. I will admit right up front that I don't know anything of this particular condition. However, my son (now 10) was born with spina bifida and all the goodies that come with it and I tell you it can be quite frightening, esp. in the beginning. However, as having been on this road for nearly 11 years now, I want to tell you from experience that you are about to embark on a wonderful, challenging, heartbreaking journey in your life. It is the beginning of some of the most trying, yet beautiful areas of your life. From my experience and having spoken to hundreds of other parents raising children with disabilities, these children are nothing short of blessings. In the beginning, you may mourn for the child that "might have been", but let me tell you, reality is better. These kids truly change your life for the better. I realize and know that this seems unfathomable to many, esp. in the beginning, but I promise it does come! You know, my son has muliple medical problems and more than his share of surgeries, etc. But I tell you, in all my years I've never met a more strong, willful, humurous caring person in my life. (Except for other children with disabilities). They are truly amazing gifts. Please, take the time to realize that while your child may have a disability of some kind, this is still your baby! This child, like any other will need love from his/her parents, understanding and compassion, just as any other child. God Bless, Ashley [ Post a Reply to This Message ]