Re: Cystic Hygroma's -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: Cystic Hygroma's

Author:
Melanie

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Date Posted: 02:34:04 03/04/04 Thu
In reply to: Sarah Clarke 's message, "Re: Cystic Hygroma's" on 13:42:59 03/02/04 Tue

I am sorry that things have been so difficult for you. It is a normal fear of every woman that she might lose her baby, and doubly so if there is any problem at all. What have the doctor's said. Have they given you any reason to hope or have they been mostly negative?

At any rate, you might find this website helpful, and it's possible you could find someone here that can help you with support where you are at:
http://www.turner-syndrome-us.org/

This is their FAQ:
http://www.turner-syndrome-us.org/resource/faq.html

Keep us posted as to how you are doing. I hope that you are able to find all of the support you need. Try contacting the Turner Syndrom Org. and see if they can find someone in your area to support you. Someone who's been there is bound to know what to expect and look for.

Take care,
Melanie

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[> [> [> Subject: Re: Cystic Hygroma's
Author: Susan [ Edit \| View ]	Date Posted: 13:42:34 03/04/04 Thu I have a cousin, age 42, with Turner's. She is FINE. The doctors told her parents she wouldn't live past 7 years of age. She lives in Washington DC, is funny, smart, have her own place, has had a full time job as long as I can remember, and is HAPPY.