Cystic Hygroma - Not a death sentence -- Poor Prenatal Diagnosis-Advice And Support

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Subject:

Cystic Hygroma - Not a death sentence

Author:
James Harvey

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Date Posted: 07:50:31 03/12/04 Fri

This is my first time visiting this site, but I have been touched by the agony many parents have been (many times needlessly) put through concerning the prospect of a baby with cystic hygroma. I am not belittling the problems that are all too often associated with cystic hygroma, but do want to offer encouragement and hope to many of you.

I was born February 21, 1956, with a rather pronounced cystic hygroma in the left side of my face and neck. My mother thought I was hydrocephalic when she first saw me. Needless to say, it scared her a bit. The doctor quickly explained what the problem was and relieved her anxiety quite a bit. I kept my bulbous "trophy" until I was two and one-half years old. That was the earliest time that doctor's wanted to attempt surgery in those days. Everything went wonderfully. I was tall for my age during elementary school years and 'a fast learner'. My IQ is well above average. Today I am a little over five feet, ten inches tall and somewhat overweight but in generally excellent health. I have a wife and two children, both very healthy.

So there are those of us who prove that doctors' opinions are not always rooted in 'fact' but oftentimes just playing the statistics.

Hope this gives some encouragement to some of you.

Sincerely,
James Harvey

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Replies:

[> Subject: Re: Cystic Hygroma - Not a death sentence

Author:
Shellie
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Date Posted: 23:07:34 03/12/04 Fri

Dear James,

Thank you so much for posting here! I think your post can help many expectant mothers who are worrying about this diagnosis. It's scary to hear your baby has a problem, and doctors tend to make things seem so bleak.

Thanks for speading the word that babies born with Cystic Hygroma can have a normal life.

Thanks for sharing your story!

Shellie

[> Subject: Re: Cystic Hygroma - Not a death sentence
Author: Monica [ Edit \| View ]	Date Posted: 18:46:39 04/02/04 Fri Wow, James!! Thank you so much for sharing your life story and info. Thank you for caring for the hurting parents. Sincerely, Monica