Re: Cystic Hygroma's and low amniotic fluid -- Poor Prenatal Diagnosis-Advice And Support

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Subject:

Re: Cystic Hygroma's and low amniotic fluid

Author:
Shellie

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Date Posted: 13:15:58 04/10/05 Sun
In reply to: Lorna 's message, "Re: Cystic Hygroma's and low amniotic fluid" on 05:41:48 04/10/05 Sun

Hi Lorna,

I'm sorry you're having to deal with a bad diagnosis. I'm with you though, I'm not giving up hope for a good outcome. It's amazing how different doctors can have totally different outlooks on the same diagnosis (and plans for treatment...I could write a book on this one). If I were you I'd seek the advice of other specialists.

When I was pregnant with my 3rd, I had low amniotic fluid (oligohydramnios) and my baby was diagnosed with IUGR(Intrauterine growth retardation). She was induced 3 weeks early because the fuild was getting way too low. In your case, I think there has to be someone willing to be proactive in insuring the best possible outcome for your little one. There are procedures that can be done while you are still pregnant, like the Amnioinfusion. They can fill your uterus with fluid. If your fluid gets too low it can cause your baby's lungs to not develope. I would talk to many doctors, as many as it takes, to locate one who is willing to take your child's life seriously and DO SOMETHING! Ask about the Amnioinfusion until you find a doctor willing to give it a try. Also, your baby can be induced quite early and still have a decent chance for survival. Talk with your doctor and ask him/her at what gestaional age your baby can be born with a good chance for survival.

By the way, in the case of my baby, she is a healthy 8 year old. I will pray that you experience a good outcome, too.

Please continue to post and keep me up to date. I truly want to know how you and baby are doing.

Thoughts and prayers~

Shellie

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[> [> [> [> Subject: Re: Cystic Hygroma's and low amniotic fluid

Author:
Lorna
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Date Posted: 02:01:24 05/04/05 Wed

Thank you Shellie for your response. I had temporarily lost the link to this forum and thank goodness I found it again! Today is our big day. We meet with the maternal fetal specialist and will find out more information. I had a lot of time to research and to come up with many questions I want answered. I also jotted down your suggestions/information as well. I will keep you updated.

Lorna