Re: Fluid found on Brain during early ultasound -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: Fluid found on Brain during early ultasound

Author:
Kayleigh

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Date Posted: 20:55:24 08/08/07 Wed
In reply to: Sue 's message, "Fluid found on Brain during early ultasound" on 18:46:54 03/17/04 Wed

Sue,
This may be a little old, but I do hope you see it
I have twin sisters. One of the twins, was born with hydrocephalus. She had her first surgery when she was 8 days old. She has had a lot of surgeries through out the rest of her life, but has lived a normal life other than that. Hydrocephalus has not limited her in any way. She has played soccer for 7 years (although not allowed to head the ball), she has gotten amazing grades in school, was crowned homecoming queen, and is now attending college for pre-med. Sometimes children with hydrocephalus are just born with it without any known reason, which is what they thought in my sister's case. But within the past 3 years we found out otherwise. She got into a fender-bender and it wasn't until then that she had symptoms of Chiari. (Key-are-ee). She had surgery to correct that, and is in the hospital at this very moment to get her shunt taken out because it is her neruosugeon's belief that she will no longer need it. My sister is 20 years old and for the first time she is going to function without a shunt. My sister does not have down syndrome, nor do any of the other hydrocephalus patients she knows, and also does not have heart defects. Hydrocephalus is not a defect as much as a bump in the road. My sister is a perfectly heathly, happy, and well functioning woman. Most people do not know she has this unless she informs them. I dont see why your child won't be just as healthy as her. I urge you to find a great neurosurgeon and go from there

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[> [> Subject: Re: Fluid found on Brain during early ultasound To Kayleigh
Author: Shellie [ Edit \| View ]	Date Posted: 13:27:11 08/09/07 Thu Hi Kayleigh, Thanks so much for sharing about your sister! Hearing about people who are living with a certain "condition" is very helpful to parents who've had a baby diagnosed with the same condition. Thanks! Shellie