Re: cystic encephalomalacia, dystrophic calcifications and more -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: cystic encephalomalacia, dystrophic calcifications and more

Author:
lovingmom101

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Date Posted: 15:34:03 01/07/08 Mon
In reply to: Gebre's MOM 's message, "cystic encephalomalacia, dystrophic calcifications and more" on 10:51:04 08/17/05 Wed

Hi. I am a Mother of a 1 year old tomorrow. My son's cord was around his neck twice and had his air cut off during delivery. He was diagnosed with cystic encephalomalacia. I went to a Dr. appt. for developmental the Dr. told me his arms and legs would be drawn up along with his hands and feet, he may not be able to talk, he would never go to school, etc. That was when my son was 5 months old. My son's arms, legs, feet and hands are no more drawn up than mine are. He has a good walking reflex. I put him on a blanket the other day and he did a army crawl all the way around it. He can sit up for a little while by hisself. Yes there are some things he's not doing right now that he is supposed to be, but our Neurologist told us 2 months ago that there is nothing he can't do without determination and as much therapy and love as we can give him. And I'm sure your doing that. I'm a firm believer in God. I don't believe he put these children here and then just give up on them. If he was through with their purpase in life he would of already taken them home to be with him. The main thing I tell myself is to never give up or stop believing he can. If we keep on believing in God to heal them and believing in them what can stop us? A Dr.??? Please never forget their human they can't tell us the future they can only make an educated guess. If there is ever anthing I can help with or if you just need to talk please write me. I would love to hear about your childs progress.

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[> [> Subject: Re: cystic encephalomalacia, dystrophic calcifications and more
Author: Agnes [ Edit \| View ]	Date Posted: 22:37:40 07/03/08 Thu thank you for your message. my son has the same problem and he's 16 months old. I'm believing God for his healing. with God nothing is impossible. God has a purpose and plan for our children. Let's keep on holding to Jehovah Rapha (our healer)