Re: cystic encephalomalacia of left frontal lobe -- Poor Prenatal Diagnosis-Advice And Support

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Subject:

Re: cystic encephalomalacia of left frontal lobe

Author:
K. Vijayshree (Neutral)

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Date Posted: 11:14:19 05/19/08 Mon
In reply to: Gebre's MOM 's message, "cystic encephalomalacia, dystrophic calcifications and more" on 10:51:04 08/17/05 Wed

Hi !
My 6 months old Son was born with application of forcep�s and under severe respiratory distress. He was kept in NICU for 5 days. Later he was diagnosed with seizure disorders and Cystic encephalomalacia of the left frontal lobe. The present condition of my child is secure. He is responding well, when called, he smiles on a more regular basis, is taking solid foods in his diet. Our concern at present is that, his right limbs are not functional. This is because a large portion of his left frontal lobe is damaged, which the doctor says will take time to heal.
We have been opined and warned for intensive training and regular physiotherapy exercises under the supervision of a specialist in physical medicine.
When asked about possible outcome, we have been told that
our son may be left with non-functional right limbs for
his entire life span.

Nevertheless i feel, in such cases, parents themselves can change the scenario by giving extra care and love to the child. Mother's have a great role to play and i am trying my best to be as much interactive with my son as i can. I am encouraging more physical as well as mental activities to ensure every thing goes well. I have full faith that my son will definately overcome the hardship and will come up with flying colors in all field one day.....

I would request the parents of all such children, not to loose hope and make best possible efforts to bring your child up.

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Replies:

[> [> Subject: Re: cystic encephalomalacia of left frontal lobe
Author: lovingmom101 [ Edit \| View ]	Date Posted: 13:15:53 06/28/08 Sat I agree with what you have said. Some days are so hard, but I believe I have found my gift and its to be a Mother. I also believe my son will over come this. I am so glad to hear from someone with a positive look on things. Thanks..

[> [> Subject: Re: cystic encephalomalacia of left frontal lobe
Author: Raj Sonnet [ Edit \| View ]	Date Posted: 08:25:12 03/07/09 Sat My daughter, age nearly 2 months is suffering from almost same problem. Kindly let me know if you any further information on the disease and how is the development of your child going. I am really worried about my daughter as she is quite small. Is there any special physical therapy you gave to your child.