My miracle boy -- Poor Prenatal Diagnosis-Advice And Support

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Subject: My miracle boy

Author:
Shelly Dowdle

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Date Posted: 18:16:02 11/17/02 Sun

I had my first ultrasound at 30 weeks and was told our son had PUVs and would not survive past birth. There was nothing to do but go home and wait for him to die.

Anyway, that was over 10 years ago and Bryan is still with us. He's been through many surgeries, dialysis, kidney transplant, etc, but he's happy most of the time and unlike the doctors told us after he was born, his life is not of poor quailty at all!

I want to help other parents who have a child with similar problems and those expecting a child like this.

There are treatments out there if you know of the condition soon enough. I don't want anyone to feel as alone as me and my husband did those long years ago.

Shelly, mom to Bryan - 10 (PUVs, 4 years dialysis, kidney transplant, g-tube, autism)

Bryan's Kidney Page - http://www.bryanskidneypage.org

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Replies:

[> Subject: Re: My miracle boy
Author: calvin pryce [ Edit \| View ]	Date Posted: 12:27:12 10/15/03 Wed my baby has been diagnosed with cystic hygorma today,can you give me some advice as my girlfriend is adamant on keeping this baby