re:cystic hygorma -- Poor Prenatal Diagnosis-Advice And Support

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Subject: re:cystic hygorma

Author:
calvin

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Date Posted: 12:16:10 10/15/03 Wed

me and my girlfriend had a 12 week scan,which to our suprise there was a problem.the scan took place at prince phillip in llanelli,they told us that it could be a encephalcele,which is the brain tissue moving away from the scull,they then transfered us to the heath university hospital of wales,where i found the consultant to be very professional,after the scan had taken place it emerged that the baby had a chromosone problem called cystic hygorma!we were asked to undertake either a cvs or a amniocentesis,the cvs was done on the day at a risk rate of 1% of mis-carriage,we decieded to go for a amniocentesis as it carries a lower risk rate,and is more accurate,the amniocentesis is taking place next tuesday when my girlfriend is 14 weeks.the baby has a 20% chance of having nothing,a 30% chance of loss and a 50% chance of downs or turner syndrome or cardiac problems,it is a very trumatic time for me and my girlfriend as we are a young couple, i am 20 and she is 19,does this usually happen in young couples.to everyone else who's going through this keep the faith!and to all the blokes be strong for your woman

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Re: re:cystic hygorma

Author:
Tracey
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Date Posted: 15:32:41 10/19/03 Sun

Calvin~
I know this can be very scary news to hear!!! My good friend, Ronda, was also told that her baby had Cystic Hygroma when she was pregnant. She too was freaked out and worried beyond belief...after doing research on this, she became even more upset and stressed. What's funny is at her next sonogram, they couldn't detect it anymore...it was gone! I'm happy to say she had a healthy baby girl this past August with NO problems! I'm not saying this will also be your outcome, but what I am trying to say is keep the faith and try to stay positive and supportive for your girlfriend! You sound like a GREAT support system for her! She's lucky to have you! :) You are not alone in this! There are many supportive people on this board to encourage and help you. :)
Please continue to come here! You, your girlfriend, and this little blessing will be in my prayers! :)
God bless,
Tracey