Re: Cystic Hygroma's -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: Cystic Hygroma's

Author:
monica

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Date Posted: 13:08:53 10/23/03 Thu
In reply to: Shannon 's message, "Cystic Hygroma's" on 09:56:57 10/23/03 Thu

Hi Shannon,

I'm glad you wrote - but sorry about the circumstances! I have a link or two for you about TS and CH. It's great that her heart looks good - that really, really makes for a better scenario for her!

http://www.benotafraid.net/story.asp?id=22

http://www.benotafraid.net/article.asp?id=14

http://www.benotafraid.net/article.asp?id=14

This last one involves a baby girl with serious heart defects, but since she also has TS, I thought you might be interested in taking a look.

I think your attitude is great - it really makes a difference when you are faced with something like this!

I'll check in to see how you are doing -- hoping and praying for you!!

Sincerely, Monica

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Re: Cystic Hygroma's

Author:
Shellie
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Date Posted: 14:00:09 10/23/03 Thu

Dear Shannon,

I'm sure you are a nervous wreck! It's great that you are seeking information and not just listening to your doctors. Hopefully you will be able to find a specialist who is willing to do his/her best to see you have a good outcome. Have your doctors talked to you about treatment options? I'll leave you with a link about fetal surgery for lymphangioma(Cystic Hygroma)

http://www.fetalsurgery.chop.edu/GNM.shtml

Shannon, I know this is a scary situation to be in! I have heard positive stories about children born with this condition. I will be praying that you will have a positve story to tell as well.

Thoughts and prayers~

Shellie

[> [> Subject: Re: Cystic Hygroma's
Author: Jeana [ Edit \| View ]	Date Posted: 10:57:10 01/26/04 Mon It was the most difficult time of our life to find that the love and joy we were expecting was suffering and not healthy. We had to make the best decision for our baby. It was the hardest thing to do. We made it clear that spiritually this child was meant to bless our lives for only a short period of time...