| Subject: Re: Cystic Hygroma's |
Author:
Elizabeth
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Date Posted: 13:41:15 11/07/03 Fri
In reply to:
Shannon
's message, "Cystic Hygroma's" on 09:56:57 10/23/03 Thu
I hope more than anything that your child is born healthy enough that these worries will become nothing more than a rich, but difficult, part of you history.
If you aren't able to get more encouraging news, I hope you might be able to find some peace during this waiting.
I, too, waited several months for a child to be born, knowing that she might not make it to delivery, and that her life would be very short if she were born living.
Eventually, I found peace, and came to cherish her movements inside of me. They might be the only way I came to know her while she was alive. I wrote about them at night, I talked to her in the womb. I also found a beautiful christening gown I'd had as an infant and prepared it to bring to the hospital, along with pins tighten it for this very tiny and possibly pre-term girl. I also bought a perfect tiny little outfit.
I had a bag packed early with the special things I wanted & reviewed my instructions carefully with my ob. He had an advance mtg with the hosp nursing team, so we'd have nurses who knew & would be extra supportive & actually chose our assignment.
At the hospital, she WAS born alive. :-) They took many photos and made a number of footprints. We held her and bathed her ourselves, wanting every single moment we could have with her. I had made sure that my medication wouldn't interfere with my ability to hold her and experience her (I had an epidural so I would be prepared if I needed an emergency c-section, but no other meds before).
We were very lucky, we took her home for over 5 months. In fact, I pushed the hospital into going home THAT day so we could be a family together for any time we had.
What I wish I had done (and would have been especially important to me if we had not taken her home): I wish someone had taken photos of her while her footprints were made. I wish we had made plaster hand casts and footcasts there. There was a special soap I subsequently used for her. I wish we'd used that at the hospital -- her very own scent. I wish I'd brought my own receiving blankets for her to be delivered into -- something beautiful & perfect, not the ugly hospital ones! I wish I had asked the nurse to write down what she remembered about my daughter's birth.
A tiny life has few memories, and when I could do something to make the memories more precious -- I guess more suitable to cherishing her perfectly -- it helped me.
If this is hard to read, I am sorry. I know it was hard for me to read of sadness, but I also know that I had to read that, so I felt I would cope if the worst happened. And then anything more was joy. five months of joy!!!
so beautiful.
GOOD LUCK. Again, I pray that you will not need ANY of this.
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