Re: Hydrops -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: Hydrops

Author:
Monica

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Date Posted: 15:00:29 01/19/04 Mon
In reply to: Laurie 's message, "Hydrops" on 16:00:24 01/16/04 Fri

Hi Laurie,

I'm so sorry that your baby has hydrops. I've read plenty of cases of hydrops w/o hygroma, so who knows, really what the future holds.

I don't know anything about treatments -- there is just not a lot of positive info out there -- which is sad b/c I have seen on various message boards over the last couple of years that there really are some children who survive despite the grim prognosis. You just don't hear about it much.

There is a site out there that discussed a family's experience with this -- they did lose their baby, but it has some good info:
http://pages.ivillage.com/mallvin/id1.html

The thing to keep in mind is that for whatever reasons, some do survive.

Here is a story of a girl with hydrops in utero who lived -- she has down syndrome (which is probably why she had the hydrops) -- and some other complex medical issues:

http://www.benotafraid.net/story.asp?id=6

and another story, a little boy (also with DS):

http://clarionherald.org/20021106/art003.htm

Please keep us updated on your situation so we can help you along!

Hoping for the best for you and baby.

PS -- good, I see Shellie gave you some treatment info.
Sincerely, Monica

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[> [> Subject: Re: Hydrops
Author: Laurie [ Edit \| View ]	Date Posted: 08:11:45 01/21/04 Wed Thank you for responding to my message. I really appreciate it. Today is the big day we find out more about what is happening with us. They believe that the cause is from the parvovirus, but we will know for sure today. I will keep you all posted, thank you sooooo much Laurie