Re: cystic hygroma-hydrops any help please!! -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: cystic hygroma-hydrops any help please!!

Author:
LACEY

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Date Posted: 01:30:40 04/02/08 Wed
In reply to: Nicole 's message, "Re: cystic hygroma-hydrops any help please!!" on 03:51:16 11/28/03 Fri

HI THERE ITS BEEN 7 WEEKS NOW SINCE I LOST MY LITTLE GIRL HOPE LIILY TO HYDROPS ITS BEEN AN EMOTIONAL ROOLACOASTER I WAS LIKE ALOT OF YOU WOMEN I FOUND OUT THERE WAS A PROBLEM AT 19 WEEKS AND WHEN THEY TOLD ME SHE WOULDNT MAKE IT ALL I COULD THINK WAS IM NOT GIVING UP EVEN IF THERE IS ONLY A SMALL CHANCE THATS BETTER THAN NO CHANCE .SO AS THE WEEKS WENT ON SHE HUNG IN THERE THEN ON THE 1/02/2008 I WENT FOR A ULTRASOUND AND THATS WHEN THEY COULD NO LONGER FIND A HEART BEAT.SO THEY INDUCED ME AND I HAD HER ON THE 2/02/2008. WE HAD HER FOR SIX HOURS AFTER I HAD HER BUT HER POOR LITTLE BODY DETERIATED TO QUICKLY SO IT WAS TIME TO SAY GOODBUY THAT WAS ONE OF THE HARDEST DAYS IN MY LIFE. BUT I SAY TO ANYONE WHO IS IN THIS POSITION NEVER GIVE UP .STAY STRONG AND HANG IN THERE AFTER SEEING MY LITTLE GIRL AND HOW MUCH FLUID WAS AROUND HER BODY I KNEW SHE COULDNT FIGHT ANY MORE. BUT I KNOW I GAVE HER THE BEST CHANCE NOW I HOPE THIS HELPS YOU TO MAKE THE BEST OF THE TIME YOU HAVE WITH YOUR SPECIAL ONE.

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Re: cystic hygroma-hydrops any help please!!

Author:
megan
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Date Posted: 07:17:44 04/30/08 Wed

I am currently 19 weeks pregnant. My baby girl was diagnosed with cystic hygroma with hydrops on ultrasound last week. She alos has an omphalocele and an abnormality in the ventricles in her heart. She has been given 0% chance of surviving past the next 30 days. We have come to terms with the diagnosis, but the waiting is killing me. We have chosen to let God take our angel to heaven whenever he see fit. I was just wandering if anyone had any advice as to how to get through the waiting period. Thanks.

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