VoyForums
[ Show ]
Support VoyForums
[ Shrink ]
VoyForums Announcement: Programming and providing support for this service has been a labor of love since 1997. We are one of the few services online who values our users' privacy, and have never sold your information. We have even fought hard to defend your privacy in legal cases; however, we've done it with almost no financial support -- paying out of pocket to continue providing the service. Due to the issues imposed on us by advertisers, we also stopped hosting most ads on the forums many years ago. We hope you appreciate our efforts.

Show your support by donating any amount. (Note: We are still technically a for-profit company, so your contribution is not tax-deductible.) PayPal Acct: Feedback:

Donate to VoyForums (PayPal):

Login ] [ Contact Forum Admin ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 12 ]
Subject: Re: cystic hygroma-hydrops any help please!!


Author:
Melanie
[ Next Thread | Previous Thread | Next Message | Previous Message ]
Date Posted: 22:26:18 01/09/04 Fri
In reply to: Aimee 's message, "Re: cystic hygroma-hydrops any help please!!" on 12:43:01 01/09/04 Fri

Hi Aimee... I hope that you are right and nothing is wrong with your baby. Sometimes that does happen.

As for cystic hygroma, it is not necessarily fatal. Here is a link on it, although you may have checked this out already:
http://www.emedicine.com/ped/topic536.htm

This site allows you to have contact with other families that have disabled children by condition:

http://www.cafamily.org.uk/Direct/c95.html

As for Down's Syndrome, the effects can be extremely mild, to severe. I know that doctors usually give the worst case scenarios.

http://www.cafamily.org.uk/Direct/d30.html

I hope these sites help.

--Melanie

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Replies:
[> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!


Author:
Pat
[ Edit | View ]

Date Posted: 02:13:07 01/10/04 Sat

Hi, Aimee,

I have a nephew with Down Syndrome. You can read about him here:

http://www.seghea.com/becky/down/downsindex.html

Here's another page I'd like to recommend:

http://www.nas.com/downsyn/holland.html

Having a child with Down Syndrome means that your blessing is simply very different. If you have a child with DS, you can count on having a child who will teach you and your family unconditional love. You can count on a child who will also love you unconditionally, a child who will reawaken your sense of wonder, and a child who has a mission in life. You will not necessarily have a child who is seriously mentally retarded. People with DS do think differently, no question about it. But they can be very, very bright. Too bad one of my favorite TV shows is no longer being aired: Life Goes On. The actor who plays the person with DS actually has it. He is obviously intelligent and well educated. My nephew is also very intelligent. He tested out with the language development of a five year old when he was 3 1/2. The key to helping a child with DS be as "normal" as possible is early intervention. When you go to my web site, please feel free to email my sister and pick her brain on that subject. She's a walking encyclopedia on it. So if you seek early intervention programs, pay close attention and work with them and use your own wisdom, and you insist that your child be given intellectual training first and foremost, your child will almost certainly do well.

I'm actually jealous that my sister got my nephew instead of me. :)

And Melanie is right. False diagnosis of DS is not that uncommon. If you have an abortion, you may well be aborting a normal, healthy child. Not only that, but having an abortion could make you prone to having a child prematurely in the future, and that could cause that child to have cerebral palsy! If, on the other hand, you have a baby with DS, and you can't cope, there's a waiting list of interested prospective adoptive parents. So try not to worry. Enjoy your pregnancy. Your doctor doesn't have a right to rob you of your joy.

Regardless of what happens, we'll be praying for you, and we know that God will sustain you. Your baby is depending on you for your protection, and you are the only person who can protect your baby. I urge you to protect your baby.

Hugs,

Pat

[ Post a Reply to This Message ]


Post a message:
This forum requires an account to post.
[ Create Account ]
[ Login ]
[ Contact Forum Admin ]


Forum timezone: GMT-8
VF Version: 3.00b, ConfDB:
Before posting please read our privacy policy.
VoyForums(tm) is a Free Service from Voyager Info-Systems.
Copyright © 1998-2019 Voyager Info-Systems. All Rights Reserved.