Re: cystic hygroma-hydrops any help please!! -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: cystic hygroma-hydrops any help please!!

Author:
Jenni
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Date Posted: 07:25:44 01/10/04 Sat
In reply to: Aimee 's message, "Re: cystic hygroma-hydrops any help please!!" on 12:43:01 01/09/04 Fri

Hi,

I remember when I was pregnant, my doc asked me if I wanted to get any tests done for DS or anything else. I asked her about the DS test and she said that it, as well as many other tests...including Amino (which can be risky for the fetus and sometimes mom), often have false positives. She told me how she was told that she was going to have a baby with DS, when she was younger... and she didn't even have a babyshower or anything like that. However, her child was born without it, a huge suprise to everyone.

I actually used to work with disabled children and actually think that the people with DS and Palsey are the luckist of all. As children and even adults, they are sheltered from all the stressful junk in life. The always contain a sweet naiveness. Next time you notice a disabled child, instead of focusing on her differences, look at her demeanor. I think you will find these children always smiling and giggling...they have the positive outlook on life that we "normal" people often spend a life-time looking for. Who's to say that we are the "normal" ones anyways? My life is anything but....

Peace,

Jenni

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Author:
Monica
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Date Posted: 21:48:32 01/11/04 Sun

Hi Aimee,

Wow! I can only imagine that pins and needles doesn't even begin to describe what you are going through right now.

When is your amnio -- have you had it yet, and if so, when are you expecting the results?

The most productive thing you can do right now, in this waiting time is to take a look at the resources we've been offering. Every prenatal diagnosis is an absolute shock -- it always requires you to reorient yourself -- but none of us are really prepared to do that. That's why it's so good that you are turning to other people for help. Now what you really should do is get in touch with parents.

Here is a good start -- and check the resources page for more places to look (as well as those already mentioned by the gals who posted):

http://www.benotafraid.net/story.asp?id=24

I'll be anxious to hear what your amnio says!!

Hang in there!

Sincerely, Monica

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