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Subject: Re: cystic hygroma-hydrops any help please!!


Author:
Kris
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Date Posted: 18:25:42 01/12/04 Mon
In reply to: Nicole 's message, "Re: cystic hygroma-hydrops any help please!!" on 03:51:16 11/28/03 Fri

I'm in a very similar situation. Today I am 16 weeks along, and our baby also has hydrops and cystic hygroma. They told me it would be days or weeks and the baby's heart would fail. I feel like I'm on such a roller-coaster. How is your baby doing and how are you? God bless you. Kris

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[> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!


Author:
Monica
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Date Posted: 09:22:39 01/15/04 Thu

Hi Kris,

On this board it seems like soo many have had both hydrops and cystic hygroma. I'm going to email you w/ the address of someone who had a baby girl w/ TS, and had both hydrops and hygromas diagnosed prenatally. The little girl lived!

It seems that there is a lot of info on the one end of possible outcomes, that there is very little chance of a baby surviving with both hygroma and hydrops, esp early in pregnancy. But, it's important to know that there *are* exceptions and any one of us could be that exception to the rule!

I'll be emailing you shortly!

Sincerely, Monica

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[> [> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!


Author:
Angelea Pickett
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Date Posted: 10:56:32 01/20/04 Tue

Can you please send me that story of the baby surviving with cystic hygorma and hydropys? Thanks, Angelea

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[> [> [> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!


Author:
Monica
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Date Posted: 11:38:06 01/20/04 Tue

Hi Angelea,

I told Kris in email, but I'll post to you here. The story I thought included hydrops actually only included hygroma. But I would be happy to share the same info I shared with Kris if you are still interested -- just let me know!

Sincerely, Monica

PS -- Wow -- Joanne is going thru this right now -- I just read her posts right after she posted.

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[> [> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!


Author:
sarah
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Date Posted: 08:28:47 05/22/08 Thu

you said you would post a web address of the baby girl who survived with hydrops can you plz email this to me ,

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[> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!


Author:
maggie Cummings
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Date Posted: 07:59:50 05/10/04 Mon

I have a friend who is 12 weeks and just found out that her baby was diagnosed with hydrops and cystic hygroma. She is also on a roller coaster and wants to find out all she can, so if anyone can give me names and #'s of doctors who specialize or can be of service please email me. It is very hard on her and her pregnancy, but I know there has to be some hope.

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