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Date Posted: 21:30:37 05/06/00 Sat
Author: Bobak K. Darvish,
Subject: Re: Inclusion Body Myopathy
In reply to: Daniel Darvish, MD 's message, "Re: Inclusion Body Myopathy" on 23:26:37 04/10/00 Mon

> > I just received a copy of the "second opinion" my
> > neurologist set up. He sent my muscle biopsy slides
> > and info. to the Mayo Clinic. The "diagnosis"
> states:
> > "Inclusion Body Myopathy" and "The patient's age and
> > absence of inflammation point to the diagnosis of
> > familial inclusion body myopathy rather than
> inclusion
> > body myositis." I was wondering, are Familial
> > Inclusion Body Myopathy, Inclusion Body Myopathy, and
> > Hereditary Inclusion Body Myopathy all the same
> thing?
> > Every time I do a web search for just Inclusion Body
> > Myopathy I come up with HIBM. Thanks. Thanks also
> > for your answer to my question about the
> antioxidents,
> > I have started taking them!
>
> Dear Cher,
> What is your background? tell me more about yourself.
> You can also email me if you wish.
>
> I am very much intereted in obtaining DNA sample from
> you, which can be obtained with a routine blood
> sample. We can send your sample to all the
> laboratories throughout the world who are actively
> resesarching vacuolar myopathies. With your help, we
> can find out what causes these vacuoles in the
> muscles, and what causes the muscle cell death, and
> maybe stop the process. Please see the research
> section. Also, if you don't mind, I would like to
> contact your doctor/neurologist.
>
> sincerely Yours,
> daniel

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Replies:

  • Re: Inclusion Body Myopathy -- Bobak K. Darvish, MD, 21:59:13 05/06/00 Sat
  • Re: Inclusion Body Myopathy -- Cher, 10:21:46 05/19/00 Fri

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