Oh boy... -- Steroid Warning Network

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Date Posted: 08:49:44 10/10/08 Fri
Author: Ivy (numb)
Subject: Oh boy...

I just got back from my pulmonologist's office for a follow up from a my hospital stay...I went in last weekend for an asthma flare/sinus infection that has been brewing since July and would not go away on oral antibiotics (so I thought). I was admitted for 24 hrs for IV antibiotics and oral pred (because I refused IV steroids)...up to 60 of pred because I refused to go higher then that LOL! The 60 of pred worked to reduce the inflammation so I could breath and the sinus infection started to get better with the antibiotics and steroids as well (while I have this sinus thing going on I am NOT allowed to be on my chemo drug also)...so they released me...which brings me to this visit...

My doc doesn't want me to go below 25 mg of pred for a while until I can get back on the chemo and UP it to 5 pills a day...I will restart the chemo this week to 4 pills (2 on Sunday and 2 on Monday) and then the next week do the 5 pills (3 on Sunday and 2 on Monday)...but the kicker is that I have to be STABLE before I start to wean down...it takes a good, solid month before stability starts with increasing these drugs and, as you all know, weaning down on the pred as far as I have to go...I am on 50 today of pred, dropping 10 mg every 3 days until I hit 25 (so the last drop will be by 5 mg)...Once I am stable on the 25 for a while we will talk about a dropping schedule from there back to my 10 mg dose that I was on before...

I am so prednisoned out...so prednisoned tired...so prednisoned looking (which I think is taking a bigger toll then it should)...I am depressed...I am so depressed that it is hard for me to see the light at the end of the tunnel on this one. I know I will get through it because I always do, but it's hard to feel it...to really believe it...I don't think it helps that I have to go shopping for bigger clothes today because I have very little that fits me properly...all my shirts are too tight on my belly...So as I blow up like a balloon, hopefully my body will get some rest and I will feel better...that is the idea anyway...then maybe this will all be worth it

Thanks for reading this mess!! I know it is one big ol' rant...

Thinking of all of you!!

Ivy

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