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Date Posted: 11:07:54 06/17/09 Wed
Author: Heide (aka Nola)
Subject: Re: Woman on a mission
In reply to: Ivy 's message, "Woman on a mission" on 10:00:03 06/11/09 Thu

Ivy,
I don't come to this board often, but just wanted you to know I think about you often and envy your strength and determination to get off the prednisone rollercoaster. I am still on it as well and have given up on trying to find a steroid-sparing helper drug. Currently on 20 mg, but there have been times I have had to go up to 30 or even 40. I cannot seam to wean below 20 without getting into trouble. Sure wish I knew what was "different" about us that we can't seem to at least get to a physiologic dose of pred. I especially relate to your statement about "losing yourself somewhere" as that is exactly I how feel. I am just a "shell" of my former self. I no longer recognize the puffed up image that stares back at me in the mirror. But we have to have HOPE that some day we will get it figured out and be back on the road to NORMALCY. Anyway, just want you to know I'm sending positive thoughts your way!

Hugs from Heide!

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