Re: different approach -- Steroid Warning Network

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Date Posted: 17:51:54 06/20/07 Wed
Author: No name
Subject: Re: different approach
In reply to: Karen 's message, "different approach" on 17:49:52 06/20/07 Wed

>Hi Ladies!
>
>First I want to say I am so sorry that everyone is
>having such a hard time with these dumb steriods. I
>hate them too. I just saw my DO today and he has
>okay'd me to start reducing but very carefully. He is
>trying something interesting with me that I have not
>heard anyone mention. He is giving me a small amount
>of Cortef (hydrocortisone). He says that helps the
>adrenal cortex and helps the withdrawal symptoms of
>weaning. I am to take 2.5 mg at 7 am and 2.5 mg at
>2-3pm - that's apparently when the adrenals kick in
>and they Cortef will help give me an extra boost as I
>withdraw the medrol. Has anyone heard of this or
>tried it? I am willing to try anything once. He says
>that it works well for some and not so well for
>others, so all I can do is try and see what happens.
>Also, he has given my 5-htp which is a
>neurotransmitter. It has really helped me sleep well
>and has really smoothed out my moods swings. I was
>totally amazed at how well I did through the stress of
>my Dad's open heart surgery last week. I of course,
>have scarring in my small airways which is most
>probably permanent, so the steriods are probably not doing anything for my breathing. This DO thinks he can help me get more lung function, but I will never be "normal", but anything more would help. I will let you all know if the Cortef really helps with reducing. It's cheap and if it helps it might be worth asking your doctors. Remember though that my doctor is alternative and most mainstream docs. are not really into alternative meds. I will keep you all posted. I take Cortef 2 days
before I start my wean. I will try going down 1 mg.
every 7 days if I can handle it. He is not on any set
schedule. He wants me to do what I can handle. If it
takes all summer to get off this stuff then that what
it takes, but I am going to go for it.
I am praying for all of you and wish you good day ahead.

God Bless! Karen

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Replies:

Re: different approach -- Karen (sorry), 17:53:43 06/20/07 Wed