Re: This is my story -have been off pred for 3 years now -- Steroid Warning Network

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Date Posted: 22:24:48 09/25/07 Tue
Author: No name
Subject: Re: This is my story -have been off pred for 3 years now
In reply to: Judy K 's message, "Re: This is my story -have been off pred for 3 years now" on 08:46:41 09/25/07 Tue

>Hi Judy,

Thanks for your understanding :)

So sorry to hear about your situation :)

Damn prednisone causes so many problems :)

Oh i just had a look at the website :) Oh you poor thing :)

I'm giving you a big hug :)

Just hang in there, we are all with you :)

Sometimes I think that you just have to have a little cry then get on with things :)

that's what I do :)

I went through such bad nausea when I got completely off the steroids so much so that i was throwing up and could not keep anything down :) They kept on taking me to emergency and then telling me it was all in my head and sending me home :)

It was absolute hell :)

I feel very deeply for you and anyone else who is struggling to get off those steroids :)

I feel very deeply for everyone on this site :)

Hang in there :)

The worst thing is that you feel that you can never be normal again :) For ten years my life stood still while everyone else moved on around me :) I still feel different from those I knew before the disease came :)

I don't know if this will help or not but this is a poem I wrote illustrating those feelings :)

The last leaf falls,
To the ground,
The tree shudders,
A last sigh of regret,
And love long gone,

I watch it fall,
A deep crimson red,
The death of a season,

I sit alone,
All has gone before me,
Shadows of friends,
Flitter past,

Sunshine flickers,
Jumps and dances,
Among the,
Bent boughs,

Selfish in its youth,
It knows nothing,
Of pain,
And loneliness,

I see them,
Go before me,
Shadows of love long gone,
Friends,
Following their own dance,

Long ago,
I danced with them,
I held onto them,
Until the darkness,
Claimed me,

My own dance was broken,
The circle,
Lies broken on the ground,

Sun's warm embrace,
Dances just out of reach,
Puzzles over young eyes,
That have seen,
Too much sorrow,

Torn,
I hesitate,
Caught,
Between the light and the shadows,
The old and the new,
Neither belonging,
To one or the other,
Lost and alone,
Dead leaves,
Scattered about me.

I read some of Leslie's poems and was quite moved especially by the one about the mirror :)

Anne

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Replies:

Re: This is my story -have been off pred for 3 years now -- Anne (big hug to everyone), 22:26:29 09/25/07 Tue
Re: This is my story -have been off pred for 3 years now -- Judy K, 20:38:58 10/06/07 Sat
- Re: This is my story -have been off pred for 3 years now -- Anne (big hug), 23:18:22 10/11/07 Thu