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Date Posted: 12:11:16 01/27/07 Sat
Author: Marcia
Subject: Re: First time to the site
In reply to: Lori 's message, "First time to the site" on 18:19:42 01/25/07 Thu

Hi, this is also my first time I have found this site. I have been taking taking predisone for 24 years. I have a rare virus called HTLV I that I got from a blood transfusion in 1977. It was dormant until 1983. The doctor sent me to a specialist who said that my adrenal glands had shut down from the years of using steroids. Now, I had back surgery and the doctor told me that he had a difficult time "sewing me up" because my tissue was like tissue paper. My neurologist said that I had to begin tapering off of predisone immediately. I filled my pills this morning for the week this morning and went to a 10-9-10-9, etc. regimine for this month. I will continue decreasing like this monthly. When did you begin to observe side effects and what were they? I would appreciate any feedback. Thanks, Marcia>

Howdy!
>
>This is my first time to find out about this site.
>I'm grateful that Leslie shares this with us. I have
>compounded Cushing's from multiple prescriptions,
>approx. 20 years on different steroids. I was
>diagnosed about 10 years ago. My case/story is very
>detailed, and if you want more details, I would be
>glad to share them with you. One thing that has
>helped me a lot is that three years ago, some friends
>told me about Glyconutrients, and they have made a
>TREMENDOUS difference for me. At that time, I was on
>15 different prescriptions for pain, sleep, etc. I
>was going drastically downhill really fast. After
>being on the glyconutrients, I am down to only 1
>prescription, and have regained a lot of my quality of
>life. I've still got a long way to go, but I now have
>hope. That's ONE of the reasons I feel so blessed.
>If anyone wants any information on the glyconutrients,
>let me know. My heart and prayers go out to all of
>you, because I know how YUCKY is is to have Cushing's.
>Yours sincerely,
>Lori

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