Re: Tried, but still determined -- Steroid Warning Network

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Date Posted: 16:47:51 11/01/06 Wed
Author: Sharon
Subject: Re: Tried, but still determined
In reply to: Sharon 's message, "Tried, but still determined" on 16:43:10 11/01/06 Wed

>Hi everyone...you were all so terrific at answering my
>questions and supporting me a couple of months ago in
>my determination to wean off pred after almost 6 years
>of at least 5mg per day and sometimes more than that.
>I have severe asthma and was first put on steroids in
>the 1980's, high doses with hospital emergencies and
>every time I got a cold or bronchitis. Six years ago,
>my wheezing became "different" and daily. Found out
>just this year that part of the problem is acid reflux
>disorder as I wheeze in my throat! However, all the
>docs I see disagree with each other on primary
>diagnosis. I am on inhaler, theophylline and have a
>nebulizer (daily use). All I have ever heard is that
>pred is the only answer and I might have to be on it
>all my life. But, as you all know, it has screwed up
>my body big time and the side effects are horrendous.
>So, I made up my mind to wean with primary doc's
>knowledge (though he has a lot to learn)...and was
>able to wean down from 5 mg. to 4 mg. for two and a
>half months. But had a bad stretch a couple of weeks
>ago (was under extraordinary stress, plus allergies,
>plus who-knows-what triggered an "almost" emergency
>situation again.)..so the doc says to up to 20 mg and
>wean down 10 every five days. I CRIED having to
>increase again and I felt like a failure. I was not
>doing all that badly on 4 mg. (except for a lot of
>muscle and arthritis pain) and I was SO PROUD. Then,
>whammo! I am weaning down by 5 mg. Tomorrow is my
>last day on 15mg (doing it my way)...and I am
>determined to get below 5 mg. again. But I would like
>to know WHY severe asthmatics are offered no kind of REPLACEMENT if they do succeed in going off pred...just given the same old asthma/allergy stuff that doesn't even work any more. Has anyone out there gone off pred and found something non-steroidal which helps them? (sorry if I messed up sending this message)

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Replies:

Re: Tried, but still determined -- becki (thinking), 19:27:10 11/01/06 Wed