Re: Tried, but still determined -- Steroid Warning Network

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Date Posted: 05:03:56 11/03/06 Fri
Author: Sharon
Subject: Re: Tried, but still determined
In reply to: becki 's message, "Re: Tried, but still determined" on 14:30:09 11/02/06 Thu

>>Becki....I want to thank you for your answer. I can
>>see that you can relate to exactly what I am going
>>through. I had heard of Xolair and had asked my
>>primary care doctor about it and he said that
>>allergists are the ones who give the injections and I
>>would have to see one of them. I have seen four
>>allergists in five years and even though I do have
>>allergies, those docs simply gave me the same kind of
>>meds taken by asthmatics, the usual inhalers,
>>nebulizers, theophylline, etc and nothing for
>>allergies at all. Have done the immunizations several
>>times and they never helped at all. I am more
>>allergic to indooor allergens than outdoor ones, but
>>the allergists were more concerned with "seasonal
>>allergies" - the least of my problems. It is up for
>>debate whether or not allergies are even the main
>>cause of my asthma. There are six generations of
>>asthma on my mom's side of the family. So, I
>>hestitated to try to xolair, especially with the 8
>>other meds I am taking, including the ones for acid
>>reflux. However, I am going to mention it to my
>>doctor again...see what he says this time. I am so
>>grateful to you for even having a suggestion....thank
>>you! By the way, someone on this board mentioned
>>having been homebound and "cooped up" for years for
>>fear of catching an infection...this is also true of
>>me. I do not even see my grandchildren because they
>>always have colds. It is a horrible way to live and
>>still would be a fear for me even when and if I get
>>off the pred. I have almost died on a few occasions
>>when I have caught a cold and then gotten
>>bronchitis...scary! Thanks again. Sharon
>
>Sharon,
>My dr. giving me my Xolair is my pulmonologist. I
>don't have an allergist. Several pulmo groups here in
>Jacksonville have put their pts on Xolair. I am also
>the one stuck at home for 3yrs. I am going back to
>work full time Monday!!!!!!! I am still at risk if I
>get a cold or respiratory infection. I just want a
>life again. I was in Tennessee a few weeks ago. I
>hadn't seen my neice or nephew in over a
>year(4&14mos). He had bronchitis and Katie was
>starting to get sick too. I saw very little of them.
>I'm taking a case of hand sanitizer and clorox wipes
>to work with me. I've also started vitamins. I have
>refused to apply for disability because I want to
>work;I want to help other people. It is a huge leap of
>faith; but it's in God's hands. This is my last try to
>go back. I feel better than I have in about 4yrs. Keep
>me in your prayers.
>becki

becki: Oh, I will definitely keep you in my prayers! I wish I could be there on Monday to give you a great big hug! Congrats on having such courage and taking the risk into a LIFE. I have been pretty much homebound for 6 yrs. I, too, take little risks and am going to take bigger ones, partly because of your inspiration. I do not work as I am disabled in other ways...but, like you, if I do have to go out (like to the doc's office) I load up with Prell and listerine and all kinds of wipes, etc. My next step is to go to the drugstore, or shopping or just to see friends or family....it's scary, though. I do have an "occupation" which is genealogy and that keeps me busy, but I miss being with people and doing things for myself.
As for pulmonologists, the last two I saw diagnosed me right off the bat with emphysema as I was a smoker...didn't have much to say about allergies or asthma or reflux...but gave me the same meds as for those things. I do not have the symptoms of emphysema...I have severe asthma! I determined never to see a pulmonologist aain. The last one was supposed to help me wean off pred...and he passed the buck back to my primary doc. Go figure. Today I go down from 15 to 10 for five days..we will see how it goes. I am SO PROUD OF YOU! Thank you with all my heart for your help and caring. Sharon

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