Re: UNBELIEVABLE! -- Steroid Warning Network

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Date Posted: 09:08:11 01/13/07 Sat
Author: Susan
Subject: Re: UNBELIEVABLE!
In reply to: Ivy 's message, "Re: UNBELIEVABLE!" on 07:04:17 01/13/07 Sat

>Susan,
>
>I avoid most fats because they make my digestive
>system move more slowly, as fats are hard to digest.
>Even the "healthy" fats make me nauseas and vomit. I
>do eat SOME fat...just not much. I understand the
>research, but while eating those "essential fats" I
>was losing TOO much weight...I was down to 94 lbs and
>losing by the day. It was scary to say the least. My
>small intestine cannot absorb the necessary nutrients
>when it goes into that mode.

Wow, you really have a tough situation on your hands. :-(

I was seriously
>malnurished. The docs were talking feeding tube until
>I found the right diet/med combo.

I'm glad you found it.

>
>I have the A1C diabetes test run every 6 months, along
>with urine and bg tests every other month.

A1c isn't at all a valid diagnostic test because it's an average; you could be running very high and very low and come out fine. It's only validity is as a measure of bg control in diabetics.

I have
>gone through weeks of testing my sugars before and
>after every meal and before bed. I was like a pin
>cushin LOL. Everything with my sugars was NORMAL
>NORMAL NORMAL

Anything after meals above 105 is not normal, though they call it that. Anything for even a moment over 140 is doing permanent cellular damage to kidneys, eyes, arteries, nerve cells and pancreas.

:-D Docs are not overly concerned
>anymore because I am so low on the pred.

I was using maybe 3 mg daily, only on my skin the past 10 years or more, at most.

>I do watch it carefully because I have types 1 and 2
>diabetes in my family (both sides). I also have lupus
>in my family (my mom) so we are up on all the research
>about diets and such...but the most important thing is
>for me to maintain my healthy status (even if it is
>not the "normal" healthy) :)

Whatever works for you, as long as you are proactive and don't take any doc's word for what is normal or healthy.
That's what got most of us here, right?

>
>I do appreciate your concern :-D

I hope you can keep moving your Pred lower and lower.

>
>I love the MUGGY S. FL...lol...my breathing LOVES the
>humidity :-D

My cockroach phobia hates south Florida. They're the size of 747s down there!

Susan

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