Subject:  Thank you DSO/Family/Dave Weissman for raising $$$ for Rett syndrome!! |
Author:
Dr. Barry
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Date Posted: 21:34:20 08/23/05 Tue
In reply to:
Herdygerdy
's message, "Gratefulfest 6 @ NLQP" on 22:40:45 08/22/05 Mon
Herdy, what a great post. It made me feel like I was there. I wish that I was, but I am in sunny Florida taking my kids to see there Grandmas before school starts on Monday. Priorities like that even take precedence over the music, but hopefully not next year!!
This is the second Ledges/Rett syndrome benefit that I have missed and believe me I am sad...but, so happy that my favorite band has adopted the Rett syndrome cause. Why do you ask? Because my lovely 8 year old daughter Elaina also has Rett syndrome!!
Rett syndrome is a devastating genetic/neurological disorder that mostly affects girls, robbing them of virtually any independant abilities and leaving them in the care of their loved ones for life. The simplest things imaginable are beyond the grasp of most girls and women with Rett syndrome. It strikes me as unbelievable that the band that I love so much also has a special place in their hearts for the cause that is so near and dear to me. Thank you Evan for bringing the band into our Rett family!
When it comes to helping out children in trouble, I can't say no. Since receiving the diagnosis for Elaina 7 years ago I went on a mission to help kids in need wherever and whenever my skills or cash has allowed. It has opened my eyes in a big way. I've traveled to Vietnam 3 times, in 2000, 2002 and 2003 doing reconstructive foot and ankle surgeries on kids with polio-all for free. Talk about a life changing perspective! I am a co-founder of the Rett Syndrome Research Charity (RSRCh), a non profit 501 c 3. Check out the website, rsrch.org. Last year we netted $100,000 at our inaguaral fundraiser and our next one is scheduled for 11/4/05 and we are hoping for 200K!!! I also felt completely compelled to contribute in the way that I could to Scott's daughter Georgiana's fund. I am proud to say that I covered the cost for about $800 worth of Custom Birkenstocks and orthotics (that I paid the lab for) and donated all the money that the band and family spent on them to her fund (and about $500 more that went to the live and silent auctions at Martyrs!!)
Giving is so important, especially for a cause that benefits children. I want to thank everyone who supported the Rett syndrome raffle at the Ledges. Your donations do make a difference! And Dave, If you are reading this I will kick in another $1000 like last year to the total. Just email me and remind me where to send the check!
Love,
Dr. Barry
PS-those custom Birks and Orthotics are on the way. I will contact everyone as soon as they are in.
>Hey now people! What a fantastic weekend from start to
>finish, weather wise, music, friends, and laughter..
>From the time Cornmeal came on to start the weekend
>off till the last note from the one man band singing
>until 5am Sunday morning, there was magic in the air.
>
>So I pulled into the park a little early (2 days to be
>exact) and decided to get a great camping site and
>settle in before the chaos started. Ran into some of
>my "family" right off the bat and had a great dinner
>with them.. you know how to cook some chicken ya
>monkey... anyway... The family members just came
>rolling in one after another, and before ya knew it, I
>couldn't turn around anywhere in the park without
>seeing someone I knew..
>
>...anyway, onto the music...
>
>Friday opened up with Cornmeal, a GREAT blue/newgrass
>band from Chicago, followed by David Gans and then
>DSO... I believe they played Rob Eaton's first
>Grateful Dead show, which was 8/6/74.. First set was
>great and the second set was long and beautiful! Wavy
>Gravy commenting and sharing stories inbetween sets,
>and making everyone laugh with his animated movements
>and tone of voice. Donna Jean sitting in and singing,
>and seeing Tiff Garcia (yes, the man who cut off
>Jerry's finger back in the day) having a great time
>and enjoying the show. One couldn't ask for a better
>evening, and expect it to only get better as the days
>went on..
>
>Saturday, was my personal favorite day for the
>Gratefulfest.. besides the hour downpour from the
>heavens, the weather, and music was FANTASTIC!!
>Started off the day with a couple swims in the lake,
>and then sat infront of the stage for the shows... DSO
>once again, rocked the night away with a steller
>preformance of 5/11/78, with a Peggy-O that made your
>eyes tear up.. Wavy Gravy at it again, telling
>stories, Donna Jean tearing it up with Lisa, and my
>favorite part of the night was the Family Drumz...
>Made my first, and hopefully not my last showing
>during drumz with a tamborine and woodblock, with Rob,
>Dino, the gang from Cornmeal, Dave, Debbie, RW,
>Prescott, Tiff, Zion, and a few I know I'm forgetting,
>thanks for the memory that will last a lifetime!
>Late-night on stage was Zion Godchaux and BOOMBOX!
>What a GREAT show! If you ever get a chance to see
>that kid play, DO IT! After the music the party had
>just begun, and we played all night..
>
>Sunday was the Benifit rally for The Rett Foundation,
>a great cause that raised over $5,000 for the cause!
>The crowd got to pick the setlists by buying raffle
>tickets and requesting the song... Raffle prizes
>included anything from free DSO tickets, to signed
>copies of books, to The Dead's final summer tour last
>summer, to old 1987 Grateful Dead Summer tour all
>access passes framed for all to see.. Hats off to
>everyone who provided for a great cause, and Dave
>Weissman who took alot of time to put this all
>together and be there everyday to run the raffle! DSO
>rocked the setlist from requests, and I got mine..
>Standing on the Moon sent shivers down my spine..
>
>Anyway, I won't ramble on to much, but I just have to
>say thank you to everyone who made that weekend
>special to me. You all are my family, and until the
>next time we meet, I will get by through the music in
>my heart... Sorry to those who I did not get to say
>goodbye to, but I know we'll be together again real
>soon.. Thanks to Wavy Gravy, Donna Jean, Zion and
>crew, Tiff Garcia, Evan and Christine, Cornmeal,
>Keller, and the rest of you talanted people. As for
>DSO and the extended family... see you all real soon!!
>Love you all!!
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