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Subject: Re: fibromialga support group


Author:
Paige Pratt
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Date Posted: 11:43:04 11/20/03 Thu
In reply to: Jan S. Kauffman 's message, "Re: fibromialga support group" on 12:57:51 12/12/02 Thu

>>>>CAN ANYONE EXPLAIN TO ME WHAT THIS DISEASE IS? I WAS
>>>>JUST DIGANOSED WITH IT? ALSO, WHAT CAN I DO TO GET
>>RID
>>>>OF THE PAIN.
>>their's a support group at childrens hospital in
>>milwaukee.
>>people meat and tell diffrent things they do to get
>>rid of the pain It WONT kill you but YOU need to try
>>and get regular sleep and eat balanced diet that
>>help's a little
>
>There are a lot of not-very-useful answers to what the
>disease is, but the best one I've found is that it's
>an auto-immune disease akin to lupus and arthritis.
>Contact your local Arthritis Association -- they call
>it "non-inflammatory arthritis" sometimes, and have
>resources, support groups,. etc.
>
>Then taking 300 mg a night dose of an anti-spasmotic
>medicine called Neurontin helps me get to sleep.
>Not-sleeping brings on all the fibromyalgia symptoms;
>also increase your magnesium and calcium intake
>(together! not alone) as this helps the muscles relax.
> Hot water like hot-tubs or baths helps the muscles
>relax, as well as slow non-stressful exercises will
>slowly bring your muscles back from painful disuse (if
>you walk make it slowly and with short steps. My
>e-mail is jsk@teleport.com and I'm in the Portland OR
>area. The Oregon Health Sciences Institute here has a
>special department for fybromyalgia, and maybe there's
>something online about it. Good luck, and don't give
>up. JanK

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