Re: Reflex Sympathetic Dystrophy -- Chronic Pain Association of Canada

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Subject: Re: Reflex Sympathetic Dystrophy

Author:
heather

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Date Posted: 15:07:07 01/28/03 Tue
In reply to: Nancy 's message, "Reflex Sympathetic Dystrophy" on 12:49:50 11/25/02 Mon

Hi Nancy,

I have had RSDS since 1990 when a cast was put on too tight for torn ligaments. Consequently I developed a contracture and my left foot is inverted at 45 degrees and dropped down. I have tried various medications but have had limited relief. Last May when my right toes started to curl they did epidurals which didn't work. I was then diagnosed with Arachnoiditis, another chronic pain disease.
I understand how you feel. Generally people don't want to hear about another person's pain or problems. You are lucky to have a supportive husband. Mine left and most of my family and a lot of friends have abandoned me because they don't want to be seen with someone on crutches/wheelchair. Most people don't understand the use of pain medications for chronic pain and assume that you are an addict if you are taking powerful pain medications. I also have been treated as if I am simply lazy. I am highly motivated but the pain often immobilizes me. People don't understand how I can be really active at one time and unable to do much at all at another. I tend to push myself and then pay a heavy price later.
I wish you the best. By the way I think one of your replies was talking about the drug Gabapentin (neurontin). It did very little for me, but may work wonders for others.
If you want to respond please write to me at Hhopalong@aol.com.

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