| Subject: Re: Reflex Sympathetic Dystrophy |
Author:
SAM
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Date Posted: 17:44:35 07/05/03 Sat
In reply to:
Becca
's message, "Reflex Sympathetic Dystrophy" on 21:19:54 06/03/03 Tue
hi bec,,,,,,,,i to have the terrible RSD...what support group do you belong to..SAM from vernon bc canada
rsd >I was diagnosed with RSD about 1 1/2 years ago.
>Although, I've been having ankle pain for years. I
>was told it was arthritis, then weak ankles. I had
>surgery about 2 1/2 years ago to correct what the
>doctor called "weak ankles". I told him if the
>surgery wouldn't stop the horrible pain in my right
>ankle to cut my foot off. He thought I was joking. I
>have lived with it for so long and felt like people
>didn't believe me. The doctors always seemed to think
>they could give me pain meds. and they should work.
>They didn't. My primary doctor has been good about
>referring me out to specialists. I now see a pain
>specialist, but I'm not having a lot of luck. The RSD
>is now in both feet, ankles, and lower legs. The
>right one is by far worse. The left, meds. usually
>help. It is very depressing. My family doesn't seem
>to understand. I have a 13 year old step-daughter
>that was throwing a temper tantrum and shut my right
>ankle in her bedroom door. This happened 3 1/2 months
>ago. I'm still on crutches. Doctors say, I may never
>get off of them. I am going through sympathetic nerve
>blocks every week. I take neurontin, ultracet, and
>trazodone every day. If needed, I take darvocet.
>Darvocet doesn't seem to help at all. Does anyone
>have any advice or something else I could try. I live
>in almost constant pain. You can e-mail me at my home
>e-mail if you'd like. I'd like to meet some others
>on-line that have similar situations. Thank you!
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