Re: Question 5 -- MSJA Genetics

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Subject: Re: Question 5

Author:
Catelin

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Date Posted: 16:32:30 12/15/03 Mon
In reply to: Megan 's message, "Question 5" on 21:54:08 12/10/03 Wed

>The doctors that suggest that their patients go
>through genetic counceling have to relize that they
>are possibly changing their patients lives forever.
>Janet's feeling of anger it very common and a relative
>of hers that might have been spared could have a
>feeling of guilt.
>The doctors and genetic councelors as a part of
>informing the patient about the risks and benefits of
>genetic testing, should make information available
>about qualified therapists or councelors that have
>experiance working with people who have shocking
>experiances.

I agree with Megan that the doctors adminestering these genetic tests have a responsibility to their patients to let them know exactly what the tests are saying and to refer them to genetic counselors, and/or psychiatric counselors. It is important that doctors do this to make sure that patients understand exactly what their risks really are and that the tests are not always the be all or end all that they will or will not get the disease. A counseler may be needed if the person feels guilty because they do not have the defective genes and one of their siblings does or they may be angry that they have the defective genes and their siblings do not. It is very important that all the risks and possibilities be explained to them by their physicians, genetic counselors, and/orpsychiatric counselors .

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