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Date Posted: 00:30:55 06/09/13 Sun
Author: Beth
Subject: Ravenbeauty's 6/7 Facebook Post

There are never words adequate enough for me to thank you. I have never seen such love and support in my life. All of this even had John in tears. He knows what you mean to me. I am posting this here, and in the astronomically large, love filled, thread below where I wrote my last status report. I have read and reread those beautiful comments again and again. You say I gave you such a gift by writing my column for so many years, giving you all the latest scoop, but what you have given me is far greater. I always wrote my column for you and you alone. I began in 2001, and continued to write them because of you and for you (and it hasn't always been easy to be the messenger as you know). The genre is very near and dear to my heart (as are you). There was a very good reason I said what I said about Prospect Park in one of my status reports below (picked up by, and requoted by Carol Banks Weber of Soapzone in their May 27, 2013 issue). It's why I refused to touch anything Prospect Park related. The thought of watching your hearts getting broken all over again wasn't worth it.

I know you have been waiting to hear about what happened since I went into the hospital to see the new Oncologist again after our 14 hour emergency room visit (what a nightmare) and to get my drain removed. The appointment with the new Oncologist was grim. You know that I keep things pretty straight with you, and I won't stop now. They replaced my beloved Oncologist, who was sharp, compassionate, and the reason I am probably still here, with a fresh out of school Oncologist who literally knows next to nothing (she prescribed a sulfa drug that thankfully CVS caught as I am highly allergic). No time to read my profile. No time for a rare case like mine period (believe me, I am praying, and counting the days until my REAL Oncologist opens up his new practice, as I am about to lose my mind here). Even though she knows that my new found Diabetes was a direct result of the chemo, she wants me to see a specialist to get Insulin (when Cat went with me that day for one of my chemo treatments, one of the oncologists, who is also no longer there, was talking to us about how he's had to give insulin to some of his patients). I guess they no longer clean up their own messes and shirk us off on specialists. More time that John has to take off work. More exposure to sick people in waiting rooms, and more copays.

In any event, if I sound a little angry, I am (exhausted). When I went down to Interventional Radiology to have the drain removed, they refused. John and I were stunned. Finally a rep came down and talked to us stating that the tube could not be removed because the Seroma they found (fluid left over from surgery) was filled with MRSA! That I would need to see an infectious disease physician immediately. I think it's official..................I have lost my sense of humor.

We are guessing that it was introduced into my chest by one of the many port accesses I have had for chemo and the flushes afterwards. They said that this can cause extreme pain (which I have had) and that they could not remove the drain (thank God I made that executive decision on my own and started that Keflex I had at home on Saturday, June 1). I asked them if I could please go home where I am comfortable and in my own bed, and they agreed as long as I saw the Infectious specialist immediately (I was shaking as one of my greatest fears has always been MRSA). I am a Germphobe, and have always been so careful. I had not taken antibiotics for over a year, so it's not as if I overdo them, and I do understand the risks.

We saw the Infectious Disease Control physician yesterday and instead of scolding me for taking the antibiotics on my own, she actually said it may have been a smart move in my case because my WBC went from 14.5 to 9.1! The problem was that Keflex is not strong enough to continue, and was not even tested against the Seroma fluid they cultured. They have just started me on Doxycycline for two weeks. If this does not eradicate the MRSA completely, I will then be placed on IV Antibiotics (praying harder than you know). No wonder I was in so much pain when I went to the ER. The MRSA was in that area inside where my right breast used to be. The thought of having something as dangerous as MRSA inside my chest area has me a little amped up here, but I am trying to think positive thoughts and doing a lot of extra prayer time at night (I want to just rip this port out right now).

Afraid to take the Gleevec right now for the cancer because it lowers your immunity, and I need this Antibiotic to kill this nasty staph without something in me that lowers my immunity even more (what a mess). I wish my Oncologist's new practice was already open now so that I could get help (real help), but he's not there yet (close). Oh, how I miss him. A woman in Interventional Radiology said that there are many who are literally frantic since he left, and are all googling him every day to see where he goes. I KNOW THE FEELING! Scared, but trying to hang in there. One of the nurses came in, and had tears in her eyes after reading my file, and asked me how I did it. I told her that it's because of God and the knowledge that there is a beautiful place awaiting me if I don't make it much longer. This is not the end. I am not done yet. I am stronger than that.

We are going back to the hospital on Monday because the infectious disease control specialist said that she had no problem with the tube being removed early next week (it's only draning 6 or 7 cc's anyway now). Can't wait to get this thing out of my chest! I will keep you posted as always. I love you and pray that you have a beautiful weekend. God bless you for all of this (seriously). Much love to you.......

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Replies:

[> Re: Ravenbeauty's 6/7 Facebook Post -- Angie, 10:03:39 06/09/13 Sun [1]

Oh Raven you beautiful girl. Praying very hard for you. I donated money to the relay for cancer for you. My daughter is walking in it. You are so right no matter what there is a beautiful place waiting for you, and God's arms are wide open. What a strong inspiration you have been for us all. Love you


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[> Re: Ravenbeauty's 6/7 Facebook Post -- Anonymous, 11:16:08 06/09/13 Sun [1]

Raven, you continue to astound me!!!!! Your courage in facing obstacle after obstacle, and still taking time to share with your readers....amazing!

I wish there was more I could do for you - but I send you and John my warmest thoughts every day. Your strength is inspirational. Your courage is boundless. i started reading your column and was amazed by how often you hit the nail on the head. Now I'm just in awe of the person you are.

Hoping your beloved oncologist is back SOON!!!


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[> Re: Ravenbeauty's 6/7 Facebook Post -- Hannah (healing light, hope, and love), 16:02:16 06/09/13 Sun [1]

(((Ravenbeauty)))

You are the most wonderful woman I've known of!

My prayers continue, and I walk beside you through your journey back to health.


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[> Re: Ravenbeauty's 6/7 Facebook Post -- Rapidi, 02:28:18 06/10/13 Mon [1]

Dear sweet Raven, I wish I knew your real name, wishing you the best as you get the complications sorted out. I wish I could do more to help. Thanks for the update. Do not worry or waste time even writing about Prospect park or soaps, just take care of yourself.


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[> Re: Ravenbeauty's 6/7 Facebook Post -- princessnanikagamine, 09:04:01 06/10/13 Mon [1]

Beautiful Buttterfly
I have mixed emotions today you are so lovely. thinking of us first. I love you for your courage. your sweetness and you strength. I have joy just to see that you are still here and still fighting. there are many who know that its the quality of you life that matters and you are a high quality girl. so rest as much as you can and know that we love you dearly xoxoxoxoo


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[> Re: Ravenbeauty's 6/7 Facebook Post -- Mistyme, 03:37:49 06/11/13 Tue [1]

Storming Heaven with prayers for you (& John too)!!! Sending lots of love & a big hug your way.


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[> Re: Ravenbeauty's 6/7 Facebook Post -- Praying for you, 03:11:27 06/12/13 Wed [1]

Dearest Raven,
They say that the human spirit is strong, and you have demonstrated that tenfold. God has drawn thousands of people to you to hear your personal story and witness your incredible strength and courage. You have reminded us that we should always appreciate our todays, and fight for our tomorrows. There is strength in numbers, and I hope that all of our positive thoughts, love, and prayers bring some comfort to you, and provide a brief shelter from the pain and frustration of your illness. May God bless and comfort you and John always. Love you so much beautiful Raven!


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[> [> Re: Ravenbeauty's 6/7 Facebook Post -- Barbara, 10:19:43 06/12/13 Wed [1]

Raven,
Oh boy, you keep getting things thrown at you, and you just keep on keeping on. You are so strong my friend. Your strength and courage is amazing, you are truly an inspiration. A Super Hero in your own right. I love that you have taken charge of your life and your health and how it will be addressed. Know you have given so much to all of us from before this horrible disease, and even now you still send us your love, thru your words and trusting us with your diagnosis and treatment... One thing is for sure, you are my hero... I continue to keep you in my prayers and hope that you do have some peace. Your John, is a true angel.
You hang strong dear one... Barbara


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[> Re: Ravenbeauty's 6/7 Facebook Post -- Ana, 05:08:59 06/13/13 Thu [1]

Ravenbeauty,

You have come so far. Not many who have been diagnosed with your conditions can say the same thing. You are still here for a reason. MRSA, ignorant doctors, or even a swarm of locusts can't alter God's will for your life.

Here are two verses that are a great comfort to me in times of testing, I hope they will also provide some sort of comfort to you in your time of trial:

"So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand." --Isaiah 41:10

"Do not fear, for I have redeemed you; I have summoned you by name; you are mine. When you pass through the waters, I will be with you; and when you pass through the rivers,they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze." --Isaiah 43:1-3

*hugs*


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