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Date Posted: 04:47:49 03/14/12 Wed
Author: Ravenbeauty
Subject: Mini Update On Me (just call me walking trainwreck).....

From my Facebook wall (I am truly sorry to all of you who are waiting in my friend queue over there). I am hoping Facebook makes a change to their policy so that I can approve you. Please know that I am not snubbing you intentionally. I am at the 5000 mark now (their friend limit) and have almost 460 of you now just sitting there in my queue. They keep letting these requests go through knowing that I can't make much room. In any event, onto what's most important right now.....

From my Facebook:

Guys,

I've just been too upset to even think straight today. I just got back from the breast surgeon's office (mine is on maternity leave, but her partner saw me). She found this one area that the plastic surgeon didn't even bother to biopsy on March 7 very suspicious. She took a chunk of it today (more stitches). She was surprised that the plastic surgeon did not bother to take it. Then in the middle of my appointment with her, the results came back from the scalp lesion and one of the area's underneath the main incision that was biopsied by the plastic surgeon on March 7 (same healthcare system-shared computer results). The lab is recommending that I have a much deeper biopsy done on the area where the scalp lesion was (can't believe I have to go through all that painful crap again with more stitches to my head because they should have taken a larger chunk the first time around). Really angry. They are calling it a Spindle Cell Neoplasm (characteristic of Angiosarcoma).

My doctor is requesting more stains on the sample that they already have now, and a new date has been set up to go back in and take a larger chunk (hopefully all) to get more details on it (they said the margins were not clear). I am so confused and exhausted from all of this that words are not adequate. When they said Spindle Cell Neoplasm, I felt sick to my stomach. Finding it harder and harder to smile and shrug this stuff off. I am back to waiting on pins and needles again to get the results of the red, raised, area underneath a part of my incision that the plastic surgeon did not even bother taking when I was there. The breast surgeon took that today. Hoping I will get something back by Friday because another weekend of waiting for results is going to make me crazy. I am so sorry that I haven't caught up out here, but I'm just not feeling it right now. I am incredibly grateful to you for your concern and notes of love and support. Just really angry right now. I will keep you posted. ♥

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Replies:

[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Johnny B., 05:30:02 03/14/12 Wed [1]

Raven, we are all pulling for you. Please don't apologize for not updating, we are more concerned for your health than some trivial update. In the grand scheme of things, you are all that matters. Please take comfort knowing that we care about you and want you to get better.


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Angela, 05:30:49 03/14/12 Wed [1]

Raven,

Even though all of us out here want to know how you are doing, how about getting someone you trust to update your Facebook and Voy pages for a little bit? Then you can concentrate on what's really important, or, better yet, just rest and TRY to relax your mind.

As for the preliminary diagnosis that you have received, no, it's not what you wanted to hear, but try to stay calm until you receive a definitive answer. I know that's easy for me to say and much harder for you to do. Just continue to breathe deeply and take one day and one step at a time.

Wishing you all the best.

Angela


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Anonymous, 06:28:29 03/14/12 Wed [1]

So glad to hear from you Raven. Sorry that you are having such a hard time because they did not do what they were suppose to do. I wish you were on the east coast and could go to Sloan Kettering to get better care. Hope you get good results back Friday so that you can relax. Be here awaiting your results. Good luck!!!


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[> [> Re: Mini Update On Me (just call me walking trainwreck)..... -- Jo Ann Zinaman, 14:50:06 03/17/12 Sat [1]



Hello RavenBeauty. I know what you are Going Through. I had Breast Cancer, but Mine was Not the Kind that you have. However, I had A Lumpectomy, but It was Inconclusive so I had to have More Surgery so They could get More Nodules. I said something like Get It Right. However, Mine was Not Painful like I'm sure Yours is Painful. I know that It is Hard, but Try not to get Too Upset. Jody


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Angie Smith, 07:57:54 03/14/12 Wed [1]

Thought about you everyday wondering how things went. Continued love and prayers for you. Remember nothing is going to happen to you, that God and you can't handle together.


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Terisha, 08:53:18 03/14/12 Wed [1]

Raven, I don't think anyone on this board cares if you aren't up to doing the soap updates right now. We can get soap info anywhere (though never as good as yours). All that matters right now is your health and well-being. Keep thinking good thoughts; the power of positive thinking goes a long way.


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- rapido, 09:47:26 03/14/12 Wed [1]

RavenB, I thought of you so many times. I can only imagine the pain of your ordeal. Do not worry one second about soap operas or soap opera updates, all trivial matters. Your health is the most important thing. Feel better soon and know many people are praying for you.


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Wendy, 10:01:36 03/14/12 Wed [1]

Please know you are in my prayers and thoughts. I can't even imagine what you are going through. Please don't give up. Fight with all your mite and kick Cancer's ass! Just know you have an army behind you.


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- guest, 11:44:27 03/14/12 Wed [1]

your health is more important that updates


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- HaroldsBone, 13:12:52 03/14/12 Wed [1]

I'm so sorry to hear of all these problems.. wishing for the very best outcome for you. Keep on fighting, and yeah, the soap updates have to take a back seat to this battle.


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Balerina (Dancingw/concern), 13:38:52 03/14/12 Wed [1]

The prayers go on for you darlin'. Just concentrate on yourself. Everything else will take care of itself. Know that you are loved.


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[> A message for Raven. -- Anon, 13:50:44 03/14/12 Wed [1]

Raven,

I have been following you for years. I've stood at the water cooler and discussed your column on Monday's after they came out back when I was working at the studio. The one thing we could all agree on is that you have the most class of any blogger or columnist out there. It's not just that you always seem to get the news first, it's more than that. The fact that you are maxed out at facebook speaks volumes about how special you are. I know just about everyone in the industry and none of them have 5000 facebook fans. You touch people with your class, your warmth, and your gift. You are not only beautiful, but strong and resilient. You have thousands praying for you. I have never seen such an outpouring in my life. I'm on your facebook, but you will never guess who I really am (and it doesn't really matter at this point). I am in awe of how much people love you. Thousands showing you love every day out there. Take strength and comfort from that. Fight with everything you have. I will keep you in my prayers always. XO.


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- shannon, 17:43:32 03/14/12 Wed [1]

Hang in there Raven, thank you for updating us on how you are doing, but please do not worry about keeping us informed. Take care of yourself right now, do not let facebook or this stuff add a second of stress. Please know you are loved, and we will be praying for you...with luv from indiana, shannon


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Billie, 22:32:29 03/14/12 Wed [1]

I wish I could talk to you, because you probaly will never see this post. Please go to MDAnderson Cancer Cebter in Houston or Sloan Ketering in NYC. Your cancer is too rare to be seen by an ordinary specialist, look at all the mistakes they have made. Wishing you all the best,you are in my thoughs and prayers.


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[> [> Re: Mini Update On Me (just call me walking trainwreck)..... -- rapido, 08:12:15 03/16/12 Fri [1]

I second the suggestion about a high level cancer center. I am not sure where you live, maybe LA? Maybe NY?

There is a consortium of cancer hospitals with special designations, they are all over the country. MD Anderson and Sloan Kettering are good suggestions. My friend with a rare cancer went to Cleveland Clinic. A family member with pancreatic cancer went to Johns Hopkins. Duke specializes in brain cancer. Different facilities specialize in different cancers.I hope you are plugged into a specialty cancer provider.
Praying for you.


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[> [> Re: Mini Update On Me (just call me walking trainwreck)..... -- Shanean Austin, 09:18:29 03/22/12 Thu [1]

Amen to that!! You are so right!!!


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Tamalemama, 00:52:10 03/15/12 Thu [1]

Raven, This has become less about the soaps and more about you.You mean so much to us all. I come here now not to see if you posted anything about the soaps, I come here to see if you have any updates on you. You are so brave and and an inspiration to us all. Keep fighting Raven because we are all fighting along side of you in spirit and with lots of prayers. Love Ya!


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- llanviewlovely, 00:52:49 03/15/12 Thu [1]

Raven, I'm so sorry to hear this, don't you dare worry about any updates right now, your health is so much more important! Don't worry about us, focus on winning this battle and kicking cancer's ass!! We are all in your corner and you are very much loved & appreciated.

As always, sending rays of healing white light your way, may God bless you and see you through this, HE IS ABLE!!!!!!


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Jean, 08:38:10 03/15/12 Thu [1]

Hang in there, Raven! We are all praying for you. I am amazed at how often I think about you when I have never even met you. You have just wormed your way into our hearts and minds. You have a lot of love reaching out to you, so just embrace it and know that God is with you. Keep us posted!! Jean


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Chloe (Hopeful), 11:24:11 03/15/12 Thu [1]

Raven, don't worry about us. You concentrate on getting well. I hate that the plastic surgeon wasn't thorough enough, but thankfully the next surgeon was on her toes. We'll keep praying for you!


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Denise, 12:04:33 03/15/12 Thu [1]

My thoughts an prayers r with u...stay tuff


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- AmyElizabeth, 08:07:14 03/16/12 Fri [1]

Raven, it pains me to see what you are going through! I am a ovarian cancer survivor so I can relate to your feelings. I absolutely agree with the person above and plead with you to at least consult with MD Anderson, Sloan-Kettering or CancerCare Centers. You won't believe the difference in treatment/care/compassion from them!
I pray for you and think of you often!!!


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Lori, 09:46:01 03/16/12 Fri [1]

wow...all the best for some good news..thoughts and prayers are with you!


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Athene c., 10:25:35 03/16/12 Fri [1]

Sending so much white light to envelope you and give you strength. Don't be afraid...you know what to do. There is freedom in the fight. And so many are right there behind you.


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- wherly, 12:30:11 03/16/12 Fri [1]

I pray that you find peace, strength, comfort and something or someone that brings you pure joy while you go through this indescribable journey. May all the prayers for your healing be answered with a resounding YES.


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Keesha, 16:44:32 03/16/12 Fri [1]

Raven, I have never known anyone as courageous as you. I am rooting for you and your recovery. Much love.

Keesha


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[> Re: Mini Update On Me (just call me walking trainwreck)..... -- Bridget Sage, 04:38:54 03/20/12 Tue [1]

Dear Raven Beauty, I just left you a message on you're Facebook. You are so amazing and have helped so many in this battle for our soaps. I hope you truly know how much we all just adore you.


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