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Date Posted: 01:37:41 11/21/12 Wed
Author: GoodWillTalking
Subject: Facebook Posting from 11/20/12

Here's today's posting (11/20/12):
Hey Guys, It's just been a little dark around here lately with things or I would have gotten out here sooner. I keep thinking back to June when I had just begun my new talk show and thought I had this dragon slayed. I need to find a way to channel that girl again and push through. I promise you that I really am trying with all my heart and soul. Thanksgiving is coming and I have a great deal to be grateful for. I'm still here, I have you, and I have John who has been there with me every step of the way. He's such a decent and kind man who this is taking quite the toll on, but he never wavers. I see the bags under his eyes and the energy loss in his eyes and voice. My Oncologist is on vacation for two weeks and it's him that I really need to see before beginning anything further (I do not want this conversation with a stranger).

They are trying to find a way to work me in once he returns. Then I will have a port installed in the hospital and begin. My case is a long shot (something they can at least all agree on), but if I don't do this, I know what I am facing for sure, and I am not ready to face it. We did the Lumbar MRI yesterday, and are going back again, as they did not add areas that we realized later should have been added (frustrating). They will be doing a lower study of the area including my hip on another day as soon as the script is faxed to them. In the meantime, I am on Oral Steroids and Percocet for pain until we get more of this sorted out.

My goal is to get shots to this area once they rule out what has caused this significant pain to begin with. We suspect the Angioarcoma has spread to this area as I had uptake on my L3 in the PET Scan done in September, but we don't know for sure. I guess they don't want to go just poking around and giving me shots until they know for sure what they are dealing with. Longest month of my life here. We are looking at Avastin and Paclitaxel for now, but awaiting the discussion with my doctor. There are great concerns about my bladder holding up. I don't usually talk about this, but as some of you rather close to me already know, I have been dealing with severe IC for years (Interstitial Cystitis). I was very glad when actress Melody Thomas Scott came out about her battle with this disease, as it is very painful and debilitating. You can look amazing and be suffering incredibly. I have had three Hydro-Distentionís in my life (swearing that I would never do another ever again) and so this is a major concern as Chemo can tear up the bladder. A lot on my mind here. The areas where the Angiosarcoma are growing have become more inflamed and painful so I know I need to move on this as soon as we can possibly get all of this together. We are already preparing for a Chemo Christmas. We still have Thanksgiving, and I am set on making that as lovely as possible.

God bless you for your unending love and support. Thank you for your strength and all the things you are sharing with me that might help. They are worth their weight in gold. I love you. ♥

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[> Re: Facebook Posting from 11/20/12 -- Anonymous, 06:20:28 11/21/12 Wed [1]


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[> [> Re: Facebook Posting from 11/20/12 -- Hannah ((((healing hugs)))), 13:33:58 11/23/12 Fri [1]

Dear Ravenbeauty,

I hope Thanksgiving was every bit as wonderful as you hoped it would be!

I pray for you each day, and hope the Chemo will bring the miracle you deserve. ((((hugs))))

Please feel all the loving thoughts people are sending to you! Love heals! :)

your friend, though we have never met yet,

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