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Date Posted: 20:43:45 01/31/07 Wed
Author: Vancomycin
Subject: Re: 遊走性風濕
In reply to: NCPdotnet 's message, "Re: 遊走性風濕 (終於可以正確顯示中文)" on 18:18:03 01/31/07 Wed


>我住在香港的, 22歲!
>我看了很多醫生, 做了很多化驗, 才診斷出是遊走性風濕!
>因為診斷出我患上此病的醫生仍為我症狀輕微,
>只要沒有惡化下去的話, 便沒有甚麼大問題,
>每次發病後立刻食止痛藥便可!
>
>可惜我明白多食止痛藥會有胃病,
>而且每隔三四日便痛一次並不是甚麼好事,
>我當然想徹底根治啦, 不過我看過幾遍網絡上的文章後,
>相信機會還是不大的多!
>
>我也詢問過醫生是否不能斷尾, 但他支吾以對,
>他說只要我減少壓力,
>莫做過激活動便能減少症狀.....但此方法完全不能斷尾,
>現在的我仍然與當天分別不大!
>
>近一兩個月, 我轉而尋求中醫, 但還是看不出有甚麼作用!
>我不介意自己的病, 只是不忍父母親擔心而已~~
>
>在此多謝閣下幫忙解答!
>多謝
>
>NCPdotnet

To be frank, even expert rheumatologists (doctors specialized in your condition) can sometimes have absolutely no clue or even misdiagnose your condition... If you have seen several doctors and their diagnosis are all equivocal, I will go ahead with the treatment plan that you have the best faith in (be it Chinese Medicine or other medical regiments).

Many diseases have (as of today) no known aetiology (i.e. we don't know exactly what causes it)... even as simple as osteoarthritis... we just cannot identify the cause of it... In light of the limits medicine can deliver in the year 2007, if the best management plan of your presenting complaint (which is pain and +/- anxiety associated with it) there are venues available to you. I don't know if switching painkiller can help but different painkillers have different indications and side effects. You can also try patches impregnated with painkiller (e.g. fentanyl patch) or joint space injection... but all these options would have to be carefully discussed with your doctor.

What you can do the next time when you see a "western" doctor is to bring up your concerns (is it pain? anxiety? or the impairment of activities of daily living?) And for each category ask your doctor to map out a short and long-term plan as to how to manage them. If you are satisfied to the pros and cons of each plan then go ahead. If not you can go to the Chinese doctor and seek their opinion (ask them to map out their treatment plans for both short- and long-term goals too).

I think this helps. Good luck to you! :-)

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