Re: Finding a doctor -- POST POLIO DISCUSSION FORUM

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Date Posted: 10:26:05 09/19/04 Sun
Author: marietta
Subject: Re: Finding a doctor
In reply to: LeeAllan 's message, "Finding a doctor" on 06:24:21 04/30/00 Sun

>Jim, my biggest goal with our support group it to try
>to help people who have had polio, especially those
>just realizing a problem, find sympathetic
>physicians. Having had cancer in 1990 and having been
>on antibiotics for Lyme disase for many years with
>paralytic bulbar polio at age 16, doctors have
>continuously tried to blame it on depression and the
>fact that I had recently lost my husband. I knew that
>there was something not right and I started really
>going downhill during radiation treatments. As we all
>know, many doctors are not very interested in our
>problems simply because once we have gone, this
>problem should be eradicated. The post polio websites
>and those who have suffered from the affects of polio
>have been the biggest source of help to me and I have
>passed much of the information on to those who do not
>have access to a computer. Recently had surgery and
>asked for local anesthesia, my surgeon was going to
>heavily anesthetize the area, but the anethesiologist
>told me that I did not know what I was talking about
>and that it was only a spinal that should concern me.
>I, as many others, had a terrible time coming around
>to be discharged home that same day. Think I am
>becoming a little too wordy but want to express good
>luck with your book and would like to read it when it
>is published.

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