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Date Posted: 06:55:15 05/29/00 Mon
Author: Baren
Subject: Baren's Letter of introduction
In reply to: Limboland 's message, "Letters of introduction" on 17:01:48 05/26/00 Fri

Hi Guys!

How fun, wish this was under different pretenses though!

My story: I had a baby a year ago Thursday (sob sob how can my baby be one) and basically I have never been the same since. About two weeks post partum I went numb on the right side of my head. I freaked out and convinced myself that I had a brain tumor. Starting having massive anxiety from fear/lack of sleep/post-partum issues. Kept seeing pcp, he said I was fine, get more rest, get some help, drink more water, try some xanax. I fought the meds because it meant that I could not breastfeed and that broke my heart. Started getting pins/needles in hands and feet, everyone wrote it off as a symptom of anxiety. Numb head was written off as pinched nerve during labor. Started to get a zinging in two of my left toes, mostly when I laid down at night-weirdest thing I have ever felt. No one could tell me what it was-fell deeper into depression and fear that I was dying. Started to have a weird feeling in my eye-like pressure-went to pcp said it was a viral infection and to use saline drops-did not help at all. At this point they sent me to neuro, she said go home and take some anti-depressants. PCP doctor agreed to order CAT Scan because he was worried about how bad I was doing, came back normal bought me some happiness for a few weeks. Started to get a feeling that there was a belt around my chest-MS Hug? Everyone said it was stress and anxiety. Lasted a couple weeks. Woke up in the middle of a nap one day and my right hand was twitching so bad I could visibly see it, could not make it stop, lasted a couple minutes, after that my right arm was weak for a few weeks. Zinging went away but left my left foot numb. At this point my eye was still feeling weird after 5 months so PCP finally agreed to send me to opthamologist for eye exam and to podiatrist for numb foot.
Opthamologist diagnosed me with Recurrent Erosion, gave me some drops that did help. Podiatrist said beats me you need to be in a neuro's office not mine. Went back to PCP said he wanted neuro to re-evaluate. Once she saw all the symptoms written down said she strongly suspected MS and wanted to an MRI. I felt relieved. MRI came back two days before Christmas normal, neuro said she wanted to move on to peripheral nerve conduction study. Had that done she said she rarely saw such normal results. Happy but now what?
She said she wanted to see me in a month to see if numbness was gone. It wasn't and I started having a feeling of heat in my right ear??? Neuro said it was too early to start re-testing but keep in touch and not to give up hope that one day I would wake up and all this would disappear. Has not happened yet. Well this week, my right foot has started to go numb and I was gonna call my nuero today but my sister made me feel like a hypochondriac and decided not to be the boy who cried wolf. Now I regret my decision, my foot feels like it is so cold that it is hot if that makes sense?

Sorry to write a novel. It kills me that my son's first year of life I have spent running to the doctors office wondering if I will be around long enough to raise him. I would like to hear your stories and am here for support and any ?'s I can help answer.

I do have a good neuro-on the CLAMS list and everything but I am thinking about going to the Rocky Mountain MS Center.....your thoughts???

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