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Date Posted: 15:46:22 07/25/00 Tue
Author: Chloe Simpson
Subject: Re: Just an update and more documented neurological problems
In reply to: Melodie 's message, "Just an update and more documented neurological problems" on 15:08:20 07/23/00 Sun

Hi Melodie

I am glad to hear that you have a doctor who believes in you -- what a difference that can make. While I am sorry to hear that there have been neurological findings on your exam, I am glad to know that you are now closer to getting some answers for your health problems. Please keep us posted!

Chloe



> One of the first specialists I saw after getting ill
> was my mother's rheumatologist. This is the only doc
> who has stood by me throughout this, seeing me on a
> regular basis, giving me meds and always believing
> that I am physically ill, "There's more diseases than
> we have names for", he says. Well I've always wondered
> what the point was of going back to him (not even
> being a neuro and nothing new seeming to happen on
> visits), but I had faith in him as a person and a
> doctor and it finally paid off!
> He just found out about my MRI and was asking me all
> about it; he did some testing (strength in upper body,
> reflexes, sensation) he found abnormal reflexes in my
> fingers (did not elaborate). He then asked me again
> which side the disk was spilling towards; I told him
> the left and he looked suprised. Then he tested my
> sensation in both arms; I was shocked to realize that
> I had less feeling on my right side! (After all, my
> left side has always hurts worse, so I thought it was
> the worse side) It kind of tickles on my left side
> with light touch, but on my right, I only feel his
> touch.
>
> Anyway, it may not be much, but this is the first time
> any neurological problems have sufaced with my
> reflexes and sensation; maybe I am getting closer to a
> diagnosis. I see a neurodiagnostic doc at the end of
> this month and maybe he will listen to me and believe
> in me like my other doc (since I have new documented
> symptoms that he can reproduce the results of). It
> seems to me and my current doctor (the rheumatologist)
> that more is going on here than the disk problems. I
> don't know if my new neuro will believe me, but I feel
> I have more of a chance now.
>
> I thought you might want to know what is happening and
> HOPE is a good thing!
>
> Melodie
>
> Oh, and my doc is also trying some new meds; I've been
> having trouble sleeping lately b/c of the spasms. I
> may be getting ahead of myself here, but I'm starting
> to let myself hope that by the time the next semester
> starts, I will know something and maybe feel better.
> Then maybe I can start to feel like I have a life
> again!
>
>
>
>
> I also should have told you that my doc diagnosed me
> with myoclonus thursday ( which I already suspected).
> Most importantly, he said that the disc problem WOULD
> NOT be causing problems in my legs (which bother me
> more than anything else). He also is going to check
> over my MRI films and the radiologist report. Finally,
> an active doctor!

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