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Date Posted: 07:38:37 08/03/00 Thu
Author: serya
Subject: Re: Introduction
In reply to: Ginlyn 's message, "Introduction" on 10:15:25 07/27/00 Thu

Hi Ginlyn and welcome.
Your story sounds so familiar. What a cruel curse has been placed upon us, ugh? I want to wish you luck with your appointment on the 28th. And be prepared that you won't know anymore after you leave the office, this happens so many times! I think it is better not to go with too many expectations, from all the reading I've done it appears there are too many BAD neuros out there. So anything more, you will be elated! HA. I myself am dealing with one that has a warped sense of information about MS, but I have to stick with him right now due to my insurance. After becoming familiar with the wonderful people here and on MGH I think my Neuro was absent that day in medical school when they discussed MS. Anyway, good luck to you and keep us posted.
Serya
>

About 6 years ago I hurt my neck. I had just ignored
> it till last year when I hurt myself at work. I had a
> cervical Mri done I found out that I had two cervical
> herniations c5-c6 and c7-t1. I wound up quiting my job
> because I kept injuring myself at work. I went threw
> every type of thing that the Doctors tell you to do
> when you have herniations and nothing helped.
> The end of last year I changed Doctors. I wound up
> with a Doctor that was just ok, They had this other
> Doctor in the same office that I had gone to in
> January that I really liked. The end of January
> beginning of Feb. I started have back pains in my
> lower back, I didn't do anything about it I could walk
> awhile 20 minutes befored having to sit down Though
> also started hurting when I stood. About April I
> started not feeling well, nothing specifec just not
> feeling like myself nothing I could put my finger on.
> In May I had this horrible headache it was so bad that
> I was crying. It started in my neck in the back and
> the way up my head. I called the Doctor's office they
> were gone but the Doctor I have now called me back,
> called in a script for pain pills. By this point my
> neck and everything to do with the herniation was
> hurting. I went in to see the Doc he checked me. He
> said I had muscle weakness in my left arm, my right
> arm was rigid, and it seemed like forever to get my
> legs to have any reflexes whatever if anything that
> meant. He had me do a Mri in June for my neck. I told
> him about my lower back that I seemed to be able to
> walk or stand less in time, as of today I'm lucky if I
> am able to walk or stand even 5 minutes and I started
> to be constipated.
> My Mri came out with the c5-6c herniation. It seems
> that right after that all the symptoms showed up. When
> I think about know I had some sensoey symptoms,
> strings touching me or things crawling on me that were
> not even there. I went to the eye Doctor because of
> blurry vision, double vision and burning eyes wether
> it be water in my eyes or tears. The eye Doc did a
> field of vision test on me which showed nerve damage
> to my eyes. I took this info back to my GP who had an
> Mri on my head done which of course showed no lesions.
> Everyone thought that nothing was wrong until I read
> that a Mri may not show anything If the disease is
> just starting so of course we are back to square one.
> I go to a neurologist Aug 28 Terrified he will not
> find anything or he will find something. My Symptoms
> are, fatique all the time,my lower back prolems,
> weakness in both arms and hands and pain in them also
> my thighs used to just feel heavy walking up stairs
> anymre they feel heavy all the time. Balance problems,
> muscle spasms, stiffness, and cramps, numbness and
> tingling in arms but mostly numbness and tingling in
> my feet. A lot of tremors in my arms and hands.
> Constipation, and bladder problems. It seems as if I
> have a lot of stiffness, all over in my arms and legs,
> anymore I feel like I have spasms and stiffness all of
> the time. So that is my story I am sure it sounds like
> a lot of you out there in limboland. Ginlyn

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