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Date Posted: 13:20:52 09/03/00 Sun
Author: Jeanne
Subject: Jeanne's Letter of Introduction

Hi,
It's nice to find a board where everyone is all in the same boat. My MS experience came about because of a continued problem I have been having with my right hand. My neuro diagnosed dystonia/writer's cramp about 10 years ago. In the last two years the problem has moved its way up my entire arm giving me problems with cramping and stiffness.
He decided to run a brain MRI just to rule out any little problems. The MRI came back with multiple areas of active lesions ranging in size from 2mm-10mm. The neuro says this looks like MS. The Evoked Potential was done last week and the technician said that they looked good except for my right auditory and the nerve response on the hook up to my right ankle/foot. Those were slightly off, and she thought the neuro might call them borderline. Still waiting on the neuro to read those. Had a LP on Thursday this week, and blood taken b/c I was treated for Lyme this summer. The Lyme had been diagnosed at onset b/c of the rash and I followed up with antibiotic therapy immediately. The MRI came several weeks after treatment had ended. Lyme does not address 10 years worth of problems, but the neuro got hung up on that and being very thourough, he ran bloodwork. He agrees that Lyme does not address the history of the past 10 years. The last six months I have had issues with achy legs, fatigue,tingling feet, hyperactive bladder, occasional blurry vision, and a bunch of other little problems that on their own amount to nothing. In the face of MS they suddenly have enourmous meaning. I am 46 years old, married with three kids ages 16-26, and a part time liberal arts student. I'm hoping that come about a week from now I will hear a definite answer on whether this is MS or not. If so, the neuro says its been low grade for at least 10 years. I suppose if we go digging we could find evidence prior to that. Meanwhile, here I am in Limboland with all of you waiting people.
Jeanne

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