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Date Posted: 07:57:44 09/04/00 Mon
Author: Chloe
Subject: Re: Jeanne's Letter of Introduction
In reply to: Jeanne 's message, "Jeanne's Letter of Introduction" on 13:20:52 09/03/00 Sun

Hi Jeanne,

It is really nice to meet you! I am sorry to hear that all of your problems might be MS. I hope that you get answer soon. The waiting to know is tough, isn't it?! Please keep us posted on how you are doing.

Also, can I ask you a question? Could you describe the problems that you have had with your right hand? I too am in limbo and recently started developing troubles with my right hand. My index finger will make large involuntary movements at rest that are over very quickly; my index finger and thumb will make small involuntary movements at rest, like twitches that are just enough to make my finger move slightly -- these that last for a long period of time, sometimes days; and also when I write my hand seems to "freeze" up and it makes writing quite hard. My hand writing even looks different. This worries me as it is my dominant hand, so it is harder for me to ignore than all of the other weird stuff. So, I would really appreciate hearing what your problems are like.

Again, welcome! It is nice to meet you and I am glad that you have joined us.

chloe


> Hi,
> It's nice to find a board where everyone is all in the
> same boat. My MS experience came about because of a
> continued problem I have been having with my right
> hand. My neuro diagnosed dystonia/writer's cramp about
> 10 years ago. In the last two years the problem has
> moved its way up my entire arm giving me problems with
> cramping and stiffness.
> He decided to run a brain MRI just to rule out any
> little problems. The MRI came back with multiple areas
> of active lesions ranging in size from 2mm-10mm. The
> neuro says this looks like MS. The Evoked Potential
> was done last week and the technician said that they
> looked good except for my right auditory and the nerve
> response on the hook up to my right ankle/foot. Those
> were slightly off, and she thought the neuro might
> call them borderline. Still waiting on the neuro to
> read those. Had a LP on Thursday this week, and blood
> taken b/c I was treated for Lyme this summer. The Lyme
> had been diagnosed at onset b/c of the rash and I
> followed up with antibiotic therapy immediately. The
> MRI came several weeks after treatment had ended. Lyme
> does not address 10 years worth of problems, but the
> neuro got hung up on that and being very thourough, he
> ran bloodwork. He agrees that Lyme does not address
> the history of the past 10 years. The last six months
> I have had issues with achy legs, fatigue,tingling
> feet, hyperactive bladder, occasional blurry vision,
> and a bunch of other little problems that on their own
> amount to nothing. In the face of MS they suddenly
> have enourmous meaning. I am 46 years old, married
> with three kids ages 16-26, and a part time liberal
> arts student. I'm hoping that come about a week from
> now I will hear a definite answer on whether this is
> MS or not. If so, the neuro says its been low grade
> for at least 10 years. I suppose if we go digging we
> could find evidence prior to that. Meanwhile, here I
> am in Limboland with all of you waiting people.
> Jeanne

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