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Date Posted: 20:19:05 09/04/00 Mon
Author: chloe
Subject: Re: Hi Chloe/Hand Info
In reply to: Jeanne 's message, "Hi Chloe/Hand Info" on 09:59:29 09/04/00 Mon

hi Jeanne

thanks so much for this information! It helps a lot. I find it very hard to tell anymore what is "normal" variation in a person's body and what is part of the "weirdness" that has recently taken up residence in my body! I have also been told by my GP that it seems like I have writer's cramp, which would make sense as I write a lot. But, in the context of all of the other strange stuff....well...who knows....that is what limbo is all about i guess!

thanks again
chloe


> Hi Chloe,
>
> About ten years ago while conducting a Girl Scout
> ceremony I discovered that I could not make the Girl
> Scout sign as my right hand would not cooperate. And I
> am right handed. I was also having a good deal of pain
> in my neck on the right side. The neuro diagnosed a
> condition called distonia/dystonia or writer's cramp
> along with a pinched nerve in my neck. He stated that
> these were both separate conditions. I thought that
> highly coincidental, but I wasn't about to question
> the specialist.
> Jump ahead to about a year and a half ago. My right
> hand continued to remain about the same: cramping when
> trying to write, horrible handwriting that at times is
> barely legible. Now the problem appears to be
> encompassing the entire right side up to the neck. I
> have developed a constant stiffness in my right arm
> that is particularly prominent in the area from the
> elbow to the wrist.
> I return to the neuro and he has me go for a brain MRI
> just to rule out anything. The MRI comes back with
> multiple areas of active lesions. Now the neuro says
> that this looks like MS. He is pretty surprised by the
> whole thing. The truth is that I never shared with him
> my many aches and pains as I figured this was a part
> of aging and that I was not doing it too well.
> The most prominent feature in my hand is the
> difficulty I have with writing that begins as soon as
> I try to hold a pen b/c of the cramping.There is also
> some problem with getting a secure grip on an object.
> Peeling potatoes has b/c a problem because of the
> cramping. I hope this info answers your question.
> Jeanne

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