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Date Posted: 20:57:24 05/26/00 Fri
Author: serya
Subject: Re: neuro appointment update
In reply to: Joan 's message, "Re: neuro appointment update" on 16:04:59 05/26/00 Fri

Sharon my dear I know just how you feel. I've been there and I too am TOO old for MS at 48! Although the MS specialist did tell me I may have possible mild MS because my symptom list was a mile long...think he was appeasing me! I guess that was suppose to be my comfort.

BUT, wipe your tears girlfriend, you don't know what a bargin you got! I got 15 minutes of the same dog and pony show but it cost me $150! What a crock!
Just forget this ever happened and settle back. I know it is so very hard. My age was thrown in my face back in February. Give yourself a few weeks to digest this. I've tried many different avenues trying to console myself since then. Husbands! Yea, if Doc said it, it must be the Gospel! Well, I just stopped mentioning my symptoms and started bearing my pain silently, cause the Doc said I'd never have full blown MS, so there's nothing gonna happen! BULL! You know your body, just like I know mine, and we both know when something isn't RIGHT! If you've had blood work you know there isn't lupus and most people I think can recognize the difference in arthritic symptoms and what we experience. My MRI show several small "somethings", but they were noted by the nuero as "unimpressive". The report said "shows signs of demylination".

You get your cry out then plan your attack! From hanging around MGH forum I know some people have several MRI's before "something" shows up. And I know there are good souls there that will testify they were over 25 when they were diagnosed. When the verdict does arrives we can wave it back in their faces. Unfortunately it won't be a victory, but our status can be changed from being melodramtic, nuts, psychological impaired and various other labels. I'm looking forward to the day when I can say, SEE, I'm not just stressed out, I'm ill damn't!

You vent here til you get it out Sharon, don't keep it bottled up. Only my husband and my best friend even knows I have problems. Husband is in denial and sometimes it's hard to read my friend. Husband won't let me tell my 3 daughters that are over 21, doesn't want to cause them unnecessary grief, so I really don't have anyone to complain. That's why I'm here. Somewhere I heard misery loves company, HA!
Seriously, I know I can be very upfront here and no one will look strange at me or say "the Doc said he couldn't find anything wrong". I sometimes have a good cry when I'm home alone, that helps too!

You might even want to write the Doc a letter, course you don't want to mail it, but store it on your pc. And each time you think of something else you want to tell him, bring it up and add to it. It will at least make you feel better to get it off your chest.

You take care now and let us hear from you soon.
Serya

Oh Sharron. {{{Sharron}}} I know just how you feel.
> Been crying between typing words on here myself a lot
> lately. Families just don't understand. I am so glad
> we have each other to vent with. I don't even share
> any of this with my sisters anymore. Yet I still get
> to hear every little ache and pain they have. And I
> just sit there and shake my head and say ohhh so sorry.

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