Re: 2 whole months and bumped again... -- Steroid Warning Network

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Date Posted: 08:58:21 10/02/08 Thu
Author: Heide
Subject: Re: 2 whole months and bumped again...
In reply to: Ivy 's message, "2 whole months and bumped again..." on 14:07:34 09/17/08 Wed

(((Ivy))) I am so sorry to hear about this setback. Seems "up the steroid dose" is always the stock answer on how to treat the inflammatory state. I can not imagine anything more frightening than not being able to breath! But you have to do what you have to do to get through it.

I too have looked into anti-inflammatory diets and alternatives. Even had a lady who does massage therapy give me a whole bag of Peau D'Arco tea that looked like bark and tastes AWFUL! Was never consistent with it but may give it another go. I have also considered a gluten-free diet and need to research that further.

Anyway, just hang in there kiddo. You are strong and tough and will get through this episode as you have the others.

p.s. I have tried many times to stay at 15 mg pred, but my condition seems happiest at 20 mg and I now have all the physical attributes of a "cushie" YUCK

>It's been 2 months since my mega dosing of 120 mg of
>prednisone for bronchitis...back to my "normal" 10 mg
>dose for a whole month...well I am back up to 40 mg
>once again for an "asthma" flare (that's what we call
>it for the time being until the NIH comes to rescue me
>from the world of
>undiagnosed-but-we'll-treat-her-anywayness LOL). I
>guess in the back of my mind I knew this flare was
>coming...as I was lowering my dose of pred (as I got
>to the lowest doses) my RSD (the painful nerve problem
>in my left foot and leg that was in remission for over
>a year) came back with a vengence from all the muscle
>spasms from weaning down...then my stomach decided to
>COMPLETELY stop up a few weeks ago...then just 2 days
>ago I was wracked with a 36hr migraine...and today was
>the clincher, I woke up ate my breakfast (which is
>part of this NEW *ALLERGEN AND INFLAMMATORY FREE*
>DIET), got super tired so I went to lay down, and woke
>up in a stridor, barely able to breath. I used my
>inhaler, nebulizer treatment, sat in the steam shower
>in hopes that would make it easier for me to breath,
>and finally I caved and went to see my pulmonologist.
>He is wonderful, but his answer (along with all my
>other docs' answers) is "up your prednisone if you are
>one big 'ole ball of inflammation". He did call my
>rheumatologist and they agreed that the methotrexate
>is not working at this dose so I am to UP that as well
>(that should be SUPER!!)...but I will do that rather
>slowly to limit the amount of nausea and mouth sores I
>get and we will also keep a close eye on my blood work
>(which luckily we JUST got and it was ALL GOOD so I
>don't have to worry for a while). My pulm. is also
>ordering a CT of my lungs to check for intersitial
>problems and all that other fun and happy stuff that
>I'm sure I don't have LOL!
>
>Anywho...thought I would give an update...well..I am
>off to eat some MILLET bread with dinner (that's what
>today's rotation of grain that I'm allowed
>is...millet...gross, I know LOL...ah, the things we
>will do in the hopes of lowering inflammation
>naturally) LOL!!
>
>Much love to you all!! I hope everyone is doing
>better then me, and that's why I haven't been reading
>many posts!!!
>
>Ivy

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Replies:

Re: 2 whole months and bumped again... -- Leslie (sad), 17:26:36 10/03/08 Fri