VoyForums
[ Show ]
Support VoyForums
[ Shrink ]
VoyForums Announcement: Programming and providing support for this service has been a labor of love since 1997. We are one of the few services online who values our users' privacy, and have never sold your information. We have even fought hard to defend your privacy in legal cases; however, we've done it with almost no financial support -- paying out of pocket to continue providing the service. Due to the issues imposed on us by advertisers, we also stopped hosting most ads on the forums many years ago. We hope you appreciate our efforts.

Show your support by donating any amount. (Note: We are still technically a for-profit company, so your contribution is not tax-deductible.) PayPal Acct: Feedback:

Donate to VoyForums (PayPal):

[ Login ] [ Contact Forum Admin ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 1, [2], 3, 4 ]

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Date Posted: 17:41:43 06/28/07 Thu
Author: Lori (Sorry this is so long.)
Subject: Help! I am SO frustrated!

Howdy Everyone!

I had to go to my Rheumatologist Tuesday, because I was having major problems with my elbow, on top of everything else. The first thing he said to me after saying hello, was: "Your Cushing's is really flaring". He could tell just by looking at my face and neck. My redness/purple hair folicles are getting more wide-spread, and my face is growing even more rounder. It is horrible! I was on steroids for over 20 years, and have been off of them for over 12 years, and I'm not getting any better. I've got such a compounded case of Cushing's, that I can no longer loose any of the weight. During the 20 years that I was on the steroids, I lost 100 pounds, 2 DIFFERENT TIMES, on the low-carbohydrate diet. (My doctors have also told me that living on that diet is why I haven't developed the diabetes that is caused by Cushing's.) The last time I was on the steroids in 1995, I GAINED 250 POUNDS, IN 3 MONTHS! After that, I was able to loose 128 pounds of that, but then the Cushing's flared and I gained 68 pounds back, so I've only been able to keep off 60 of that 250 EXTRA pounds. I weigh 400 pounds, and LIVE of a very restricted diet, all of the time. After my visit with my doctor this week, I now realize that I probably won't ever get to loose the weight, but I'm going to continue living on the diet to keep from getting the diabetes.

On top of all of that, my tendons, etc. are tearing so bad, WITHOUT ANYTHING TO CAUSE INJURY, and even on non-weight bearing areas, that it's really tough to deal with. You ought to see me. I have braces on both feet, a TENS unit on my lower back and braces on my right elbow and sometimes on both wrists. That is the reason that I don't get to send messages as much as I would like to, because of all of the pain. I'm now 51 years old, but my Cushing's/steroids started when I was only 18 years old, and has gotten worse year after year.

You are all in my prayers. My heart goes out to all of you when I read your notes, because I KNOW AND FEEL where you are coming from. I don't always respond in writing, but I always respond in my heart and prayers. God bless each and every one of you.

Love and Hugs,
Lori

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Replies:

Post a message:
This forum requires an account to post.
[ Create Account ]
[ Login ]
[ Contact Forum Admin ]

Forum timezone: GMT-8
VF Version: 3.00b, ConfDB:
Before posting please read our privacy policy.
VoyForums(tm) is a Free Service from Voyager Info-Systems.
Copyright © 1998-2019 Voyager Info-Systems. All Rights Reserved.