Re: First Post - Prednisone Withdrawal -- Steroid Warning Network

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Date Posted: 15:09:43 07/01/07 Sun
Author: Lori (I'm SO sorry!)
Subject: Re: First Post - Prednisone Withdrawal
In reply to: Alexis 's message, "First Post - Prednisone Withdrawal" on 11:31:21 07/01/07 Sun

Howdy Alexis!
I'm sorry you are going through all of this. Everyone on here knows and understands what you are going through.

Do you have a Rheumatologist, and have you been tested for Fibromyalgia and Chronic Fatigue Syndrome? That can all be brought on by steroids, and that would explain your tiredness, achiness, and tender skin. ALL of these symptoms are part of Fibromyalgia. I'm not a doctor, but you might want to ask and find out. I'm so happy that you were able to totally get off of the steroids! Please do EVERYTHING in your power to never get on steroids again. I never knew what steroids could do, and the doctors had me on them for right at 20 years (starting at age 18) and I've had Cushing's since then, but just wasn't properly diagnosed with it till about 10 years ago. The more often you have to take steroids, the worse the symptoms become.

God bless you in your fight against this!

Love and Hugs,
Lori

>Hi,
>I am writing to share my experience and to see if it
>is 'normal' and try to understand how much longer I
>need to deal with the unpleasant effects of prednisone
>withdrawal.
>Diagnosed with sarcoidosis during a hospital stay in
>early April 2007 for partial paralysis of the face (no
>stroke, no palsy, so Drs think sarcoid caused
>granuloma around crainial nerve). Prescribed
>Predsnisone 60mg/day and after 1 week, paralysis
>subsided. Got all the side effects: swelling, a lot of
>weight gain, psychological side effects worsened
>existing impulse disorder (some days I just screamed
>at everyone), felt 'speedy', obsessive, panic, etc.
>After 1 month began to taper down..about 10mg per 2
>weeks. Down to about 10 mg at start of June. As of 4
>days ago I finally tapered to 0 mg (accelerated
>against Dr.s advice) I just want to get this stuff out
>of my system and get this all behind me. Anyway, the
>past few days have been tough. Here are the main side
>effects of the withdrawal: extreme fatigue, some
>achiness, skin it tender, some aggressiveness. Effects
>seem to come in "waves". Has anybody experienced
>similar symptoms? Any advice to make the experience
>less 'harrowing'? How much longer do I have to deal
>with this until I sense some relief? I am just so
>frustrated and I am desperate to just feel normal and
>myself again (and look mysef again!!) I appreciate
>anybody's advice. I guess also just knowing I am not
>alone in suffering from this would help me feel a
>little better. Thanks so much,
>Alexis

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