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Date Posted: 11:53:15 02/22/09 Sun
Author: Ivy (sigh...)
Subject: Re: Yet another kink in yet another plan...UPDATE
In reply to: Ivy 's message, "Yet another kink in yet another plan..." on 13:15:37 02/09/09 Mon

Well...I am back up to 80 mg of prednisone after yet another flare up on Friday. I tried the baclofen, like my doctor suggested, and instead of opening my vocal cords, it made it MORE DIFFICULT for me to breath...that was special. I was in the attack for 8 hours! I waited 6 1/2 hours before deciding to up my prednisone by 5 mg (which after being in the attack for that long did nothing)...and another hour before bumping up another 5 mg. In total it took a good hour and half to work, but the prednisone did open my throat (thank goodness I didn't have to go to the hospital, because that was the next step). I am at my wits end here...my pulmonologist is telling me to stop searching for a name to my disease...he says naming it is not important, but stomping down my immune system IS! I have 2 more weeks to go to know if the Arava is going to work or not (well...that is the earliest I will know if it works), so I have to stay on 80 mg for at least that long. FABULOUS NEWS!

I hope everyone is fairing better!!

Ivy

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