Re: Conclusions of Steroid Withdrawal -- Steroid Warning Network

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Date Posted: 07:00:32 01/29/07 Mon
Author: Susan
Subject: Re: Conclusions of Steroid Withdrawal
In reply to: Heide 's message, "Conclusions of Steroid Withdrawal" on 06:57:11 01/29/07 Mon

>Well, I think I've finally come to the conclusion that
>the symptoms I go through every time I try to wean
>down below 15 mg are INEVITABLE. It sounds like most
>of us have experienced this at some point and have had
>to go through it. Ivy described it perfectly, it is
>like having flu symptoms only x 100 (1000 is more
>accurate though ha ha). The nausea, wretching,
>fatigue, etc etc to me is unbearable and I truly feel
>like I am dying when I'm going through it. I think I
>know the answer to this, but could ANYONE go through
>that AND maintain a full time job? Am I just a wimp?
>It sounds like I would literally have to take weeks
>off from work to ride it out and that just isn't an
>option for me. Since my endo isn't too keen on
>starting me on the Imuran, I've been wracking my brain
>trying to figure out if there are any supplements
>(just started taking Siberian Ginseng and B complex
>vitamins) to try to ease the stress on my adrenals,
>but not sure if this is really helping.
>
>Out of sheer desparation at this point, I occasionally
>do searches online re: steroids weaning and wondered
>if anyone is familiar with the Marshall Protocol
>www.marshallprotocol.com/forum2/1917.html
>It specifically addresses weaning from steroids and
>the use of Benicar 40 mg every 6-8 hours to "greatly"
>relieve symptoms as well as avoiding all forms of
>ingested vitamin D (food and supplements) and
>sun/lights. I will investigate this further!
>
>Needless to say, I feel like I'm in a Prednisone
>Prison and there will never be an escape for me. Sorry
>if this sounds so down, just needed to vent my
>frustrations and hopefully get some opinions on this.

Have you tried taking pantethine, 300 mg 3X per day, or even in the a.m. once per day each time you reduce steroids? Pantethine stimulates your own natural steroid production. It's the only way I could eat or sleep while having Addisonian symptoms.

Hope things improve for you,

Susan

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Replies:

Re: Conclusions of Steroid Withdrawal -- Heide, 08:22:09 01/29/07 Mon
Oops, one more ? for Susan re: pantethine -- Heide, 08:31:34 01/29/07 Mon
- Re: Oops, one more ? for Susan re: pantethine -- Susan, 08:37:03 01/29/07 Mon