Re: imuran -- Steroid Warning Network

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Date Posted: 03:40:22 04/04/07 Wed
Author: Ivy
Subject: Re: imuran
In reply to: big ma 's message, "imuran" on 00:38:33 04/04/07 Wed

Big Ma,

I am so happy to see you are back on the board...we missed you!! I take Imuran's sibling, 6-mercaptapurine (6-mp). It has been a true blessing to me. I was able to go from 12.5 mg of pred, where I was STUCK and still getting flare ups all the time...to 7 mg where I am stuck again, but now I do not flare up as easily. I also look much more like myself then I had in years...since this whole mess started really. I am back down to a "normal" weight and I don't have the cushing features like I did on 12.5.

BUT...these drugs are NOT for everyone!! It is chemo so it has it's own major side effects to contend with: liver failure, pancreatitis, low white/red blood counts, sores in and out of the body (I get them in my mouth), dryness...EVERYWHERE, nausea (in the beginning), fatigue (in the beginning mostly). You have to get your blood checked every 4-6 weeks in the beginning to make sure your body is not freaking out with the med...a CBC and CMP should be done every month until you are stable on a dose, then every 2-3 months after that. I had bad side effects for a month on each dose I was given. I started at 25 mg and went up by 25 mg every month until I hit 100 mg...those dose was too much for my body and I had to stop it for 1 month and do the process all over again. I am now stable on 50 mg and doing OK. So far my blood work has been perfect, so I am pretty much in the clear that way, but I still am a bit anal about it, and have it done all the time anyway.

Be SURE TO FIND A DOC WHO IS USED TO GIVING THE IMURAN/6-MP!!! IT WILL MAKE ALL THE DIFFERENCE IN THE WORLD IF YOU DO!!! DO YOUR RESEARCH TOO!!

Talk to you soon!! Much love/hugs/prayers!!

Ivy

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Replies:

Re: imuran -- Heide, 05:57:33 04/04/07 Wed

Re: imuran -- Ivy, 08:21:59 04/04/07 Wed