Re: I've missed you all! -- Steroid Warning Network

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Date Posted: 14:00:55 05/15/07 Tue
Author: Lori (Thank you !)
Subject: Re: I've missed you all!
In reply to: Susan 's message, "Re: I've missed you all!" on 09:07:01 05/14/07 Mon

Howdy Susan!

Thank you so very much for the information!! Someone had told me that the low-carb. diet added to or could cause kidney stones, especially if a person is prone to them. It is such a blessing to know what you told me! Now I can go back to that, because that is the only diet that I was able to loose over 100 pounds, 3 different times, from the effects of the Cushing's. I've been on a low-glycemic diet for a couple of years, and it just isn't working for me. There are too many carbohydrates with it.

Thanks a bunch for your help!!

Love and Hugs,
Lori

>>Howdy Everyone!
>>
>>I've missed getting to be on here and visit with
>>everyone. I've been reading all of your enteries, and
>>just wanted to give each of you a great big hug! I
>>can empathize with all you are going through, and my
>>heart goes out to each and every one of you! I've
>>been in bed, with a cast on my leg, with a torn tendon
>>in my ankle. I didn't fall or do anything to "earn"
>>it either. (I understand that is another one of the
>>YUCKY side effects to Cushing's, I don't know on that
>>one. Do any of you know about that? I know it
>>affects the muscles and bones, but didn't know it
>>would effect the tendons.) I will be having to spend
>>at least 8 more weeks, mostly in bed, with this on.
>>I'm up for a few hours each day, because staying in
>>bed is causing more pain and problems with my knee and
>>hips.
>>
>>Please, all of you, do everything in your power to
>>get totally off of all steroids!! I was on steroids,
>>off and mostly on, for asthma and injuries, for over
>>20 years. I've been totally off them for over 12
>>years. The LONG-LASTING effects are horrible!!!!!
>>One of the things I'm dealing with are kidney stones.
>>Last year, I had to have 2 surgeries, 6 weeks apart,
>>to get rid of them. I'm concerned that I'm getting
>>more. Part of the Cushing's is kidney stones. The
>>best diet to help Cushing's, is the low-carbohydrate.
>>Being on the low-carbohydrate diet, can add to kidney
>>stones, because of the high protein. HELP!!!!!! Can
>>anyone give me any ideas? I'm so desperate!! I feel
>>like I'm stuck between a rock and a hard place.
>>
>>Thanks for being on here! I'm sorry you are all
>>dealing with this, but, I sure do appreciate knowing
>>that there is somewhere like this, that I can ask
>>questions. For over 10 years, I was the only one that
>>I knew of that had any form of Cushing's Syndrome, and
>>the majority of people I know, had never heard of it,
>>till I got it.
>>
>>You are all in my thoughts and prayers.
>>
>>Love and Hugs,
>>Lori
>
>
>Lori, there is no scientific evidence of kidney stones
>as a risk of low carb diets, nor of anything but
>improved kidney function as glucose and insulin levels
>fall.
>
>The only studies with kidney stones as a complication
>of ketongenic diet are for those epileptic children
>fed a nearly pure fat diet, both zero carb, virtually
>and very low protein.
>
>Drink your water!
>
>Susan

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