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Date Posted: - 7:55--am, ------ 04/04/09 Sat
Author: Sportyangel
Subject: Hi Guys!

Im so sorry Ive been away. I have had some major stuff hit me all at once. I have had to deal with family issues, my own and husbands, but basically dealing with us being on our own. That is another story. The biggest thing Im dealing with right now is my middle son. He is 13. Hes been having pains in his hands and feet since December. We thought it was growing pains, told him to keep walking and using his hands, it would get better. It didnt. He has been in so much pain he can barely walk and cant even make a fist with his hands. I started taking him to the foot dr, didnt know where else to start. The foot dr said he is flat footed and is showing some stress from growing pains, but he didnt think that would have anything to do with his hand situation. He said the only thing he could do was to send him for blood work to see if he had rheumatoid arthritis. Then I would have some test results to take to the pediatrician. Well, after a week, they came back. The arthritis test was negative, but his SED rate test was 32 and normal is 0-15. So of course I was freaking out, couldnt eat or sleep...foot dr obviously was stumped. Said he has an infection somewhere but it wasnt his field. Told me he would check around and call him in about a week. Well you guys know me, patience is NOT virtue of mine, especially when it comes to one of my children. I finally got an appt for him with the pediatrician. She did some tests, and another test came up slightly higher levels, and his red blood count was alittle low. So after another 2 weeks more, she finally said he needs to go to a Rheumatist, she is leaning towards arthritis. I asked her how is the rheumatoid arthritis test was negative, she said its not always correct...wtf????? Ok, she called yet another week after, and said there is only one rheumatist who comes to my city one day a week, and she doesnt see children!!!! OMG!!! So she said he would have to go to childrens hospital about 2 hours away, to their rheumatology department. A week and half later, we get to the appt. Based on his symptoms, some of his joints being swollen, his motion being restricted and him being stiff, along with the apparent useless blood work we had already had done...she said he has polyarterial juvenile rheumatoid arthritis...TEARS...She has him on physical therapy, and steroids for alittle over two weeks to get it under control and ease the pain and all that. He goes back in less than 2 weeks, they will change his physical therapy and then put him on the arthritis medicine or medicines he needs to be on. He will have to go frequently at first for dr visits, then reduce to checkups. The problem im having besides my child being sick...is that I told him to basically walk it off. I told him that it was growing pains way back in December. If I had been a better mother, I would have took him to the dr then..but no, I thought I knew what I was doing. I havent been able to sleep much or eat much at all for quite awhile now...I feel pain for my son and guilt for not being a better mom and taking care of him. Im sorry I havent been around..Ive been focussed on him for several several weeks. I hopefully will be around now alittle more. Thanks for not desserting my board guys...you are the best! HUGS

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